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The Rett-002 study is now open for enrollment. Eight sites have been initiated and are now recruiting. For more information about the trial, study locations and how to register your interest visit www.rettstudy.com.
Twelve clinic sites of the fourteen are now enrolling and conducting study visits. We encourage you to contact the clinic site that you’re interested in enrolling with. Visit our website for more information about this important study.
Thank you to everyone that had a part in making the LA Feast & Fundraiser Benefiting Rettsyndrome.org such a success! We were blown away by the support, awareness and funds that were raised Saturday night in LA. There is still time to bid on items from the Silent Auction. See the items here.
Rettsyndrome.org and the Family Empowerment Board are currently conducting a survey to let your voice be heard! Please take 10-15 minutes to complete the 2016 Rettsyndrome.org Family Survey. We want to know what is most important to you and learn how you feel Rettsyndrome.org can improve in our mission.
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What's in your state? Local and national parent-approved resources for Rett families.
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Often called the “Rett Syndrome Bible”, all the information you need for your journey
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Strollathons are Rettsyndrome.org's signature fundraising events.
Rett Racers is one of Rettsyndrome.org's signature fundraising programs.
There are many ways to get involved and host a fundraising event to benefit Rettsyndrome.org.
4600 Devitt Drive Cincinnati, OH 45246
EIN 31-1682518 CFC 11046
Mail checks to:
P.O. Box 706143, Cincinnati, OH 45270-6143
Rettsyndrome.org is a 501c(3) non-profit corporation registered as the International Rett Syndrome Foundation