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The Rett-002 study is now open for enrollment. The University of Alabama at Birmingham, AL, Boston Children's Hospital, MA, Baylor College of Medicine, TX and Greenwood Genetic Center, SC have all been initiated and are now recruiting. For more information about the trial, study locations and how to register your interest visit www.rettstudy.com.
Nine clinic sites of the fourteen are now enrolling and conducting study visits. We encourage you to contact the clinic site that you’re interested in enrolling with. Visit our website for more information about this important study.
In 2015, tremendous progress was made in our efforts to advance Rett syndrome research. This year holds even more promise for Rett syndrome as Rettsyndrome.org continues to fund research programs.
Join us for the First Annual LA Feast & Fundraiser on Saturday, June 11th from 6:00 - 10:00PM. The event will take place at Cafe Pinot and Maguire Gardens in LA. Register early or if you can't attend consider sponsoring the event.
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Often called the “Rett Syndrome Bible”, all the information you need for your journey
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Strollathons are Rettsyndrome.org's signature fundraising events.
Rett Racers is one of Rettsyndrome.org's signature fundraising programs.
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Rettsyndrome.org is a 501c(3) non-profit corporation registered as the International Rett Syndrome Foundation