Great News! Rett Syndrome Listed as Topic Eligible for Dept. of Defense Research Funding

We’re excited to share that on March 11th President Biden signed the Fiscal Year 2022 (FY22) Omnibus Appropriations bill into law. The measure lists Rett syndrome as one of the topics eligible for funding through the U.S. Department of Defense’s (DoD) Peer-Reviewed Medical Research Program (PRMRP). Congress provided a total of $370 million for roughly 50 topics in this account, and the result is that researchers studying Rett syndrome will be able to apply for millions of dollars in federal grants through this account.

Community Advocacy Made It Happen!

We would like to thank our incredible Rett syndrome community for its advocacy efforts, as so many of you contacted your U.S. Representative and U.S. Senators to urge their support for this effort.

We’d like to especially thank Reps. Abigail D. Spanberger (D-VA-7) and Brad Wenstrup (R-OH-2) for their leadership in sponsoring the House Support Letter for listing Rett syndrome as a topic eligible for PRMRP funding in the FY22 Defense Appropriations bill. In addition, we’d like to thank the following Representatives for signed the support letter to the Defense Appropriations Subcommittee:

Rep. Sheila Jackson Lee (D-TX-18) Rep. Lloyd Doggett (D-TX-35) Rep. Lucy McBath (D-GA-06)
Rep. Danny K. Davis (D-IL-07) Rep. Jimmy Panetta (D-CA-20) Rep. Marie Newman (D-IL-03)
Rep. Al Green (D-TX-09) Rep. Nydia M. Velázquez (D-NY-07) Rep. Carolyn Bourdeaux (D-GA-07)
Rep. Jim Himes (D-CT-04) Rep. Mondaire Jones (D-NY-17)]

Given the great need for additional research on Rett syndrome, IRSF is excited to have Rett syndrome listed as topic eligible for Dept. of Defense funding. Next, we will be working with the Rett syndrome research community to help guide them through the process of applying for these research funds.

Read the press release