Update: Federal Funding Support for Rett Syndrome Research Pending in U.S. Senate

Great news! Thanks to your efforts, Rett syndrome has been listed in the draft report supporting funding for the U.S. Department of Defense (DoD)’s Peer Reviewed Medical Research Program (PRMRP) for fiscal year 2022 (FY22). Having Rett syndrome listed as a PRMRP topic means that researchers will be eligible to apply for millions of dollars in federal grants for Rett syndrome research for FY22.

However, these funds will not be available unless a final FY22 Defense funding bill is approved by Congress. The next step is for House and Senate conference committee to negotiate differences between the House-passed Defense funding bill and the draft document introduced in the Senate –which includes the listing of Rett syndrome among PRMRP topics.

IRSF continues to advocate on Capitol Hill to support funding for Rett syndrome research to advance treatments and a cure. To add your voice to this effort, we ask that you contact your two U.S. Senators and U.S. Representatives to reiterate that Rett syndrome be included as a PRMRP topic in the final FY22 Defense appropriations bill.

You can send an email to your Senators by visiting www.senate.gov, and you can reach your U.S. Representative by visiting www.house.gov and providing your zip code and/or street address in the upper right-hand corner of the webpage. Customize this letter and copy it into the member’s contact form.

Please reach out to Andrea at [email protected] if you have any questions or comments.