Help Secure Federal Funding for Rett Syndrome Research

We need your help to have Rett syndrome listed as a topic eligible for federal research funding through the U.S. Department of Defense (DoD) Peer Reviewed Medical Research Program (PRMRP).

How you can help:
Use the instructions below to contact your U.S. Representative and U.S. Senators TODAY!

Contact your Representative

  • Click here and input your Zip Code and your address, if prompted, to find your U.S. Representative:
  • Click your Representatives name to view their website and look for the “Contact” tab to access their contact portal
  • Follow the portal instructions and include your home address on the contact form
  • If asked to select a Topic, choose Budget or Spending or similar
  • If prompted for a subject line, use “Please Support Rett syndrome Research in the FY22 Defense Funding Bill”
  • Use the Draft Letter here to craft your message.  In the second paragraph insert details of your experience with Rett syndrome. Copy and paste it into the message area.

Contact your Senators

  • Click here and select your state. Click each Senator’s name to be directed to their website
  • From your first Senator’s website, look for the “Contact” tab to access their contact portal
  • Follow the portal instructions and include your home address on the contact form
  • If asked to select a Topic, choose Budget or Spending or similar
  • If prompted for a subject line, use “Please Support Rett syndrome Research in the FY22 Defense Funding Bill”
  • Use the Draft Letter here to craft your message.  In the second paragraph insert details of your experience with Rett syndrome. Copy and paste it into the message area.
  • Repeat the above steps to message your second U.S. Senator.

Need more help or information about this effort? Email Andrea Reed at [email protected]

THANK YOU for taking action now to ensure that federal research funds are available to help researchers develop new treatments and a cure for Rett syndrome!