Make Your Voice Heard

Advocate for someone you love with Rett syndrome. 

Take action now to raise awareness of Rett syndrome in your state, advocate for accessible and affordable care, and help secure federal funding for critical research towards treatments and a cure. The most powerful advocacy tool is your story!



Educational Guide to Rett Syndrome

Contact Katie Busch at [email protected] with further questions.


A FIRST FOR RETT: FDA approves Trofinetide for the treatment of Rett syndrome!
It’s Giving Tuesday - Go ALL IN for Rett!