About Us

At Rettsyndrome.org, our mission is to accelerate full spectrum research to cure Rett syndrome and empower families with information, knowledge, and connectivity. We advocate and raise awareness about Rett syndrome so the scientific and medical community, policymakers, educators, caregivers, and the general public can more thoroughly know, understand, and be motivated to help the research efforts and individuals living with Rett syndrome on a daily basis.






We Invest in Research

Since 1999 Rettsyndrome.org has invested more than $51 million in Rett syndrome research. See the research projects we are funding.

We are Obsessed with Efficiency

89% of every dollar funds research and family empowerment.

Our Performance is World-Class

We have exceeded industry standards on Charity Navigator, GuideStar and America’s Best Charities annual ratings of charities.