Events

Mar
13
Wed
ASHA Rare Diseases and Disorders: SLP Assessment and Intervention @ Online Conference
Mar 13 – Mar 25 all-day
In March, Theresa Bartolotta, PhD, CCC-SLP, will present at an online conference from the American Speech-Language-Hearing Association (ASHA) on Rare Diseases and Disorders: SLP Assessment and Intervention. Pass this information on to your child's SLP or care provider who can earn CE credits for attending! The Rett Syndrome Communication Guidelines: A Resource for Best Practices in SLP Assessment and Evaluation Theresa Bartolotta, PhD, CCC-SLP This session will discuss how the features of Rett syndrome impact communication as well share strategies to assist individuals with Rett syndrome and their families in advancing communication to improve quality of life. The session will focus on The Rett Syndrome Communication Guidelines—the first evidence-based resource for assessment and evaluation of communication skills in individuals with Rett syndrome. After completing this session, you will be able to:
  • summarize the contents of the Rett Syndrome Communication Guidelines
  • identify resources for best practices in communication assessment and intervention for individuals with Rett syndrome
  • use the Rett Syndrome Communication Guidelines to assist team members in understanding how the features of Rett syndrome impact communication
Content disclosure: This session focuses on a particular assessment and intervention guide. MORE INFORMATION
Jun
18
Tue
2024 IRSF Rett Syndrome Scientific Meeting @ The Westin Westminster
Jun 18 – Jun 19 all-day
Date: June 18-19, 2024 Time: All Day Location: Westminster, Colorado LEARN MORE The research community is invited to join us in Colorado for the 2024 IRSF Rett Syndrome Scientific Meeting next June! Part of ASCEND 2024, the IRSF Rett Syndrome Scientific Meeting brings together scientists and researchers studying Rett syndrome and related areas from around the world. During this 2-day meeting, attendees representing academia, industry, and governmental agencies will share their latest research advances and discuss ways to leverage learning in the lab to be rapidly deployed in the clinic. The IRSF Rett Syndrome Scientific Meeting is the only annual, global, and comprehensive research meeting focused exclusively on Rett syndrome. Thank you to our sponsors: Presenting Sponsor: Platinum Sponsors:
Jun
19
Wed
ASCEND 2024 Rett Syndrome National Summit @ The Westin Westminster
Jun 19 – Jun 22 all-day
Designed to unite us as a community, this event will bring together parents, families, clinicians, researchers, and Rett organizations around the world. Come join us in the Mile High City as we ascend to greater heights at The Westin Westminster. This location offers sweeping views of the Rocky Mountains and is conveniently situated just 15 minutes from both Denver and Boulder. Featuring a lineup of expert speakers, updates on Rett syndrome research, and opportunities to connect with your Rett community, ASCEND 2024 is not to be missed. Look out for information on early bird registration, discounted room rates, and more later in 2023! Together we can overcome the challenges of Rett syndrome and reach the summit of hope and healing–a world without Rett syndrome. REGISTER & MORE INFORMATION

Thank you to our sponsors:

Presenting Sponsor: Platinum Sponsors:
Oct
2
Wed
9th World Rett Syndrome Congress
Oct 2 – Oct 5 all-day
RETT Syndrome Association of Australia is excited to announce the 9th World RETT Syndrome Congress. This will be held on the Gold Coast in Queensland, Australia on Wednesday the 2nd of October until Saturday the 5th of October 2024. MORE INFORMATION