Events

Jul
26
Tue
RettEd | Transitioning into Adulthood, Part 1: Medical Transition
Jul 26 @ 1:00 pm – 2:00 pm

Date: July 26, 2022
Time: 1-2 p.m. Eastern Time

Transitioning into Adulthood Series:
Our children grow up, and while they don’t outgrow their need for us, they (and you!) can enjoy an enriched adulthood with proper planning, goals and vision. Please join us for this 3-part series as we look closely at what needs to change, what needs to be secured, and what creative living and life options are out there for your adult with Rett syndrome.

This first session in our 3-part series on Transitioning to Adulthood will provide strategies and resources to empower you and your young adult through the transition from pediatric to adult medical care. Our dynamic guest speaker Jessica Nickrand comes to us from the Child Neurology Foundation (CNF) Transition of Care Program—its largest and most diverse program—which helps to support youth, families, and child neurology teams in the medical transition. Using CNF’s approach and toolkits will empower your transition planning across many medical specialties. Medical transition is not a one-size-fits-all process, and this workshop-style talk, which includes stories from other caregivers and individuals in the Rett community, will empower your family to have the best, most family-centered transition of care possible. This talk will reflect feedback and questions from the IRSF ASCEND Summit presentation.

INFORMATION & REGISTRATION

Sep
27
Tue
RettEd | Transitioning into Adulthood, Part 2
Sep 27 all-day

Date: September 27, 2022
Time: TBD

Transitioning into Adulthood Series:
Our children grow up, and while they don’t outgrow their need for us, they (and you!) can enjoy an enriched adulthood with proper planning, goals and vision. Please join us for this 3-part series as we look closely at what needs to change, what needs to be secured, and what creative living and life options are out there for your adult with Rett syndrome.

Part 2 session description coming soon!

Nov
29
Tue
RettEd | Transitioning into Adulthood, Part 3
Nov 29 all-day

Date: November 29, 2022
Time: TBD

Transitioning into Adulthood Series:
Our children grow up, and while they don’t outgrow their need for us, they (and you!) can enjoy an enriched adulthood with proper planning, goals and vision. Please join us for this 3-part series as we look closely at what needs to change, what needs to be secured, and what creative living and life options are out there for your adult with Rett syndrome.

Part 3 session description coming soon!