Date: Saturday, September 23, 2023
Time: 10:00 a.m. – 1 p.m. ET
Location: Makino Park (6100 Kopfler Ct, Mason, OH 45040)
IRSF’s RettConnect is a free picnic and outing for families to build connections with other members of the Tristate Rett syndrome community. Registration is free but required.
Date: Saturday, September 23, 2023
Time: 10:00 a.m. – 1 p.m. Eastern
Location: Crowder County Park (4709 Ten-Ten Road, Apex, NC 27539)
Event Chairs: Gwen Noecker (Contact Email)
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Date: Monday, September 25, 2023
Time: Registration 9 a.m. | Shotgun Start 10:30 a.m.
Location: Thousand Oaks Golf Club (4100 Thousand Oaks Drive NE, Grand Rapids, MI)
Event Chair: Rebecca & Andrew Visser (Contact Email)
Join the Visser family for their inaugural Goals Fore Gracie Golf Tournament in honor of their 4-year-old daughter with Rett syndrome, Gracie. Sponsorships, foursomes, and individual tickets are available now!
Date: Saturday, September 30, 2023
Time: 9:00 a.m. – 5 p.m. ET (registration opens at 8:30a)
Location: The Children’s Hospital at Montefiore (Bronx, New York)
Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.
Date: Saturday, September 30, 2023
Time: 10:00 a.m. – 1 p.m. Eastern
Location: East Goshen Township Park (1661 Paoli Pike, West Chester, PA 19380)
Event Chairs: Siobhann Bennett (Contact Email)
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Date: Sunday, October 1st, 2023
Time: 1-4 p.m. CT
Location: Environmental Learning Center (13550 Dakota Ave S, Savage, MN 55378)
Event Chairs: Mary Kallstrom (Contact Email)
Save the date to WALK N’ ROLL with us!
Make sure to follow the event on Facebook to stay up to date!
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Date: Sunday, October 7th, 2023
Time: 9:00 a.m. – 12 p.m. Eastern
Location: Thompson Park, Old Orchard Picnic Pavilion (805 Newman Springs Road, Lincroft, NJ 07738-1695)
Event Chairs: Leslie Greenfield & Allison Fitzgerald (Contact Email)
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Date: Saturday, October 7th, 2023
Time: 10:00 a.m.-1 p.m. ET
Location: Matthew Henson State Park (13421 Georgia Ave, Silver Spring, MD 20906); park at the Matthew Henson Trail Park & Parking Area located behind the Global Mission Church
Event Chairs: Toni Moore (Contact Email)
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Date: Saturday, October 7th, 2023
Time: 10:00 a.m. CT
Location: JCC St. Louis (2 Millstone Campus Drive, St. Louis, MO 63146)
Event Chairs: Joyce Opinsky, Amy Kreher, & Amanda Sommer (Contact Email)
Make sure to follow the event on Facebook to stay up to date!
The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Date: Monday, October 16, 2023
Time: Registration 8 a.m. | Shotgun Start 10:00 a.m.
Location: Falcon Ridge Golf Course (20200 Prairie Star Pkwy, Lenexa, KS 66220)
Event Chair: Sam Evans (email) & Haley Douglass (email)
Join the Douglass and Evans family for their inaugural On the Ridge for Rett Golf Scramble in honor Vivian who has Rett syndrome. Sponsorships, foursomes, and individual tickets are available now!