You Are Not Alone
Rettsyndrome.org is comprised of parents and friends of those diagnosed with Rett syndrome who have walked this journey. We are dedicated to providing families with the latest medical information, aggressively funding the most promising research for a cure, offering meaningful support, raising public awareness and advocating for all living with Rett syndrome.
Find resources and connect you with people and families that are on the same journey.
Become Rett Research Ready and search myRett Trial Finder to find studies that may be right for your family.
Natural History Study
Learn how and why your child can participate in this vital study – at any age.