Helping Families Thrive

At International Rett Syndrome Foundation we believe that helping and supporting families of children with Rett syndrome is one of the most important parts of what we do. We provide tools, resources and information to not only walk this journey, but to thrive.

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Care & Development

Learn how to monitor their wellbeing to understanding potential symptoms and treatments.

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Communication

Learn about different communication options available that allow your children to maximize their abilities.

Rett patient in graduation attire surrounded by graduates

School

Learn how to advocate for your child’s needs in school.

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Equipment

Learn about funding opportunities for your family and what is available through schools, insurance, and other sources.

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Adolescence & Beyond

Learn more about how to prepare for the teen years with Rett syndrome.

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Rett Blogs

Find stories from other families and employees for International Rett Syndrome Foundation.

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Tissue & Organ Donation

Give the gift of hope and help advance Rett research.