Helping Families Thrive

At Rettsyndrome.org we believe that helping and supporting families of children with Rett syndrome is one of the most important parts of what we do. We provide tools, resources and information to not only walk this journey, but to thrive.

Care & Development

Learn how to monitor their wellbeing to understanding potential symptoms and treatments.

Communication

Learn about different communication devices available that allow your children to communicate.

Rett patient in graduation attire surrounded by graduates

School

Learn how to advocate for your child’s needs in school.

Equipment

Learn about funding opportunities for your family and what is available through schools, insurance, and other sources.

Adolescence & Beyond

Learn more about how to prepare for the teen years with Rett syndrome.

Rett Blogs

Find stories from other families and employees for Rettsyndrome.org.

Tissue & Organ Donation

Give the gift of hope and help advance Rett research.