Get Involved

We are closer than ever to finding life-changing treatments and a cure for Rett syndrome. There are many ways to get involved and make an impact. Everyone can do something to join the effort to cure Rett syndrome. See all the ways you can get involved below, or email us to learn more.


90 cents of every donor dollar goes directly to research and programs. Click here to use our online donation form or learn about other unique ways you can give.

Raise Awareness

Most people who have not been impacted by Rett syndrome are unaware it exists. More awareness means more support for families and more funding for critical research.


Events offer a unique opportunity to get people involved with Rett syndrome who might otherwise not have the opportunity. See our event calendar for more information!


Create fundraisers that are fun, shareable, and effective in raising the money we need to help families and find a cure for Rett syndrome.


Shop online and support IRSF with your purchase. Shop the IRSF store or make a purchase from one of partners who donate a portion of sales to our mission.


Learn how to advocate for accessible and affordable care in your state and help secure federal funding for critical research.

Join Our Mailing List

Sign-up to receive news and information from IRSF and how you can help create a world without Rett.


One great way you can help is by volunteering. Click below to contact us and we’ll find the perfect fit for you.

State Proclamations

Join the effort to get your state or local government to proclaim October as Rett Syndrome Awareness Month.