Raise Awareness
Your story sparks change. Rett syndrome is rare, but your voice can make it impossible to ignore. Every time you speak out, you open eyes, shift hearts, and bring new allies into the fight. Awareness fuels momentum, and momentum drives progress. See how you can build it below.
Make Rett impossible to ignore.
There’s no one right way to raise awareness. Whether you’re posting on social media, sharing your story, or just starting a conversation, you’re helping others understand what Rett really means.
And you’re not in this alone. IRSF has tools, ideas, and support to help you speak up and make an impact.
Engage on Social Media
We offer social media graphics, profile frame filters, and more to help you share across platforms, inspire others, and raise awareness for Rett. Make sure to tag us when you post so your followers can learn more about Rett!
Create a Personal Fundraising Page
With our easy-to-use giving platform, you have everything you need to get your personal page up and running in minutes! Use your campaign to share your story with your community, raise awareness, and invite family and friends to join you in funding life-changing research and support.
Advocate for Rett
You can raise awareness for Rett syndrome in your state, advocate for accessible and affordable care, and help secure federal funding for critical research toward treatments and a cure. Your voice matters!
Rett Syndrome Awareness Month
October is Rett Syndrome Awareness Month, a dedicated time to share stories, foster understanding, and rally support for continued advancements in Rett syndrome research and care.
It’s the 2nd annual Purple Out for Rett! Go purple October 17-19 to spread Rett syndrome awareness online and within your local community.
Shop the New Collection
This Awareness Month, wear your heart on your sleeve—literally—with our exclusive “I 💜 Someone with Rett” tees. When you shop, you’re not just getting a shirt. You’re fueling research, empowering families, and helping create a future with more treatments and more hope.
Available for a limited time in multiple colors and both adult and kid sizes.
Social Media Graphics
Download our social media posts to share across platforms, educate your network on Rett syndrome, and encourage them to donate to help advance trailblazing research for treatments and a cure. You can use these graphics during October’s Rett Syndrome Awareness Month and beyond. Be sure to tag us on Facebook, Instagram, or X when you post!
Rett Syndrome Facts
Rett Syndrome IS and IS NOT...
Did You Know?
About IRSF
Profile Picture Generator
Use our tool to customize your social media profile picture and help us spread awareness about Rett syndrome. NEW FRAMES JUST ADDED! Click on the button below to begin.
Angel Awareness Cards
Personalized Angel Awareness Cards can help you explain Rett syndrome to those around you and encourage them to learn more. Fill out the form below with information about your loved one to request your card. We will design the card based on your selections and provide you with a final high-resolution file that you can upload to any online or in-store printer.
Make sure to include the link to your personal fundraising page to direct people to learn more about your loved one’s Rett syndrome journey.
Angel Card Request Form
Complete the form below to request your Angel Awareness Card today!
Questions?
Have additional questions or ideas on how to raise awareness? We’d love to hear from you!
Take Your Support to the Next Level
The next wave of critical advancements in the fight against Rett will only be possible with financial support. Learn how you can take your support to the next level for someone you love with Rett syndrome.