Welcome to Rett Research Ready™ and
the myRett Trial Finder.
At International Rett Syndrome Foundation, we’re committed to helping you understand what it means to participate in a clinical trial and provide you with personalized research opportunities. We believe in a world without Rett. We invite you to join in the effort to bring new treatments — and ultimately a cure — to our loved ones.
Jack Kuwik, Dad to Ann
Jenny Mosca, Mom to Kayla
Patty Mevis, Mom to Kira
What Are the Types of Research?
Research is necessary to discover life-changing new treatments – and eventually a cure – for Rett syndrome. There’s Basic Research, Translational Research, Neuro-habilitation Research, and Clinical Research. Here, we define each type of research, and explain what each contributes to the goal of creating a cure.
How Are New Therapies Developed?
The development of any new drug or therapy for Rett syndrome or any disorder must follow a scientifically rigorous and well-regulated path. This path is designed to make sure that any new therapy is safe and effective when it is made available to the public. The therapy development path is divided into five stages.
Clinical Trial Phases
Before any new treatment reaches the market, it must be tested in a series of interventional clinical trial phases to determine if it is safe and effective. Each phase must answer a different question about the new therapy. As such, each follows a different study design.
What to Expect: Your Rights & Protections
Choosing to participate in a clinical trial is a big decision for your family. We want to help you understand your rights and protections as a research volunteer. Many regulations and safety measures are in place to ensure your loved one’s health and safety and minimize risks.
myRett Trial Finder provides clear and easy-to-search information related to all Rett syndrome clinical trials listed on clinicaltrials.gov. The tool will be updated with new studies as they begin recruiting volunteers. Additionally, International Rett Syndrome Foundation will work with study sponsors to include additional research opportunities, such as neuro-habilitative and observational studies and surveys.
Programming made possible through the generous support of the following: