Rett syndrome is a complex disorder and requires specialized care and understanding to help your child and family thrive. Rett syndrome clinics understand the diagnostic criteria of Rett syndrome and are dedicated to identifying the various needs of those diagnosed with Rett syndrome.

IRSF has designated 18 Rett clinics as Centers of Excellence. They are dedicated to providing best-in-class clinical care and have demonstrated the following:

  • A physician director with expertise in Rett syndrome care
  • Health care services that meet the unique needs of individuals with Rett
  • Involvement in clinical trials
  • Contribution to the IRSF Rett Syndrome Registry to increase understanding of Rett syndrome

Your child’s care may come from many local providers who may not be familiar with Rett syndrome. Visiting a specialty clinic will benefit your child and provide a source of experts for the local care provider to consult with if complex issues arise.

Please contact the Rett clinic directly to schedule an appointment and discuss payment options and insurance coverage.

Download the Guide to Clinic Visits

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