Empowering you with the knowledge to thrive.
At IRSF, we believe that every family and caregiver should be empowered with the information and knowledge needed to help your loved one with Rett thrive. We offer a menu of educational resources, opportunities, and family events where you can learn both from professional experts and other families who have walked this path before. Check out our in-person and online RettEd programs below.
Registration is Now Open!
IRSF’s ASCEND 2024 Rett Syndrome National Summit will be held in Westminster, Colorado on June 19-22, 2024. Featuring expert speakers, updates on Rett research, and opportunities to connect with your Rett community, ASCEND 2024 is not to be missed.
Connect. Share. Grow.
RettEd Days are designed to provide information, enrichment, and connection for anyone involved in the care of a loved one with Rett syndrome. Held at select IRSF-designated Centers of Excellence for Rett syndrome care, these full-day sessions cover topics including research updates, medical and therapeutic intervention strategies, state specific programs & services, communication strategies, and more.
For the Whole Family
IRSF’s RettAway is a destination vacation for families to spend time together and build connections with other members of our Rett community. Held in years without a national summit, it’s an exclusive opportunity for families to have fun together in a location that understands the challenges and joys of caring for a loved one with Rett syndrome.
The 2023 RettAway brought nearly 70 families together in San Antonio, Texas, for a fun-filled weekend including a day at Morgan’s Inspiration Island Splash Experience, part of Morgan’s Wonderland accessible theme park, reserved exclusively for Rett families.
Our RettEd Video Library feature a playlist of webcasts that feature expert speakers on various Rett-related research and care topics to help build your personal pathway to empowerment. Recordings are available for free on our YouTube channel. Make sure to subscribe to our channel to be notified when new videos are added.
Find our full RettEd Video Library on our YouTube Channel.
Thank you to our 2023 Empowerment Sponsor, Acadia Pharmaceuticals, for helping IRSF provide educational resources and support to families affected by Rett syndrome.
Have an idea for an online or in-person Rett-related care, treatment, or research topic we should cover in the future? Contact Paige Nues, Family Empowerment Director, at [email protected].