Rett Education

At International Rett Syndrome Foundation we believe that every family and caregiver should be empowered with information and knowledge. We believe that you can learn this from expert panelists through live and online educational opportunities. Every month, there are opportunities for you to learn about different topics for people with Rett syndrome. These are unique opportunities geared toward families, caregivers, clinicians, and therapists.

RettEd Webcasts

RettEd interative webinars with the experts
RettEd is a regular series of live webinars featuring expert speakers on various Rett-related research and care topics to help build your personal pathway to empowerment. At the end of each webcast, attendees have a chance to ask questions and hear questions from others. There is no cost to participate, but online pre-registration is required.

Our 2022 line-up features a 3-part series on Transitioning to Adulthood, starting with the Medical Transition. You can also subscribe to our YouTube channel to view past recordings at no charge.


Rett syndrome Ed Days are designed to provide information, enrichment and connection for families, caregivers, educators, clinicians, and therapists to empower our community. Topics and discussions will include: research updates, medical and therapeutic intervention strategies, state specific programs & services, communication strategies, and other unique workshops. Stay tuned! As we emerge from the pandemic and family meetings can again commence at our Center of Excellence and regional sites, look for new dates.

Our 2021 educational programming is made possible through the generous support of the following:

Previous RettEd Webcasts

Adulthood: Living & Lifestyle

Autonomic Issues in Rett Syndrome

Clinical Trial Update: December 2019

Clinical Trial Update 10.13.20


Communication Guidelines


Gene Therapy: CRISPR/CAS9


GI Issues

Gross Motor Skills

IEP Strategies for Inclusion

IEP Strategies: A Primer

Longevity in Rett Syndrome

Mini-Brains in Space

Movement Disorders

New Parents



Pain in Rett Syndrome

Protected Tomorrows

¿Qué es el síndrome de Rett?

Research Update 2019

Research Update: September 2019

Respiratory Issues

Russia Rett Syndrome Cultural Exchange



Taking Care of Yourself


What is Rett Syndrome?

What’s Going Right in Their Brain?