At International Rett Syndrome Foundation we believe that every family and caregiver should be empowered with information and knowledge. We believe that you can learn this from expert panelists through live and online educational opportunities. Every month, there are opportunities for you to learn about different topics for people with Rett syndrome. These are unique opportunities geared toward families, caregivers, clinicians, and therapists.
Have an idea for an online or in-person Rett-related care, treatment, or research topic we should cover in the future? Contact Paige Nues, Family Empowerment Director, at [email protected].
A regular series of live webinars, RettEd webcasts feature expert speakers on various Rett-related research and care topics to help build your personal pathway to empowerment. At the end of each webcast, attendees have a chance to ask questions and hear questions from others. There is no cost to participate, but online pre-registration is required.
Past recordings are available for free on our YouTube channel with our most recent webinars available at the bottom of this page.
RettEd Days are designed to provide information, enrichment and connection for families, caregivers, educators, clinicians, and therapists to empower our community. Topics and discussions will include: research updates, medical and therapeutic intervention strategies, state specific programs & services, communication strategies, and other unique workshops.
Stay tuned for more information about our 2023 dates!
San Antonio, TX | June 22-25, 2023
Save the date to join us at Morgan’s Wonderland Accessible Theme Park! We’ll be spending the day at Morgan’s Inspiration Island Splash Experience, a tropical-island paradise with colorful splashpads, a river boat adventure ride, and more!
Stay tuned for more information!
ASCEND rett syndrome national summmit
During the last week of April 2022, IRSF welcomed more than 500 members of the Rett community to the ASCEND 2022 Rett Syndrome National Summit. View the agenda, read the event recap, and access the ASCEND Resource Library for session videos, presentations, and more. The library is available for FREE for attendees and just $75 for anyone who wasn’t able to join us in Nashville.
Thank you to our 2023 Empowerment Sponsor, Acadia Pharmaceuticals, for helping IRSF provide educational resources and support to families affected by Rett syndrome.
RettEd Video Library
IRSF offers a library of videos featuring expert speakers to help you on your personal pathway to empowerment. These videos feature expert speakers on various Rett-related research and care topics, from communication to genetics, current therapeutics to the medical complexities of Rett, living your best Rett-life and so much more. Check out our most recent RettEd webinars below, and CLICK HERE for the full video library.