Rett Education

At Rettsyndrome.org we believe that every family and caregiver should be empowered with information and knowledge. We believe that you can learn this from expert panelists through live and online educational opportunities. Every month, there are opportunities for you to learn about different topics for people with Rett syndrome. These are unique opportunities geared toward families, caregivers, clinicians, and therapists.

RettEd Webcasts

RettEd Monthly interative webcasts with the expertsRettEd is a monthly series featuring expert speakers on various Rett-related research and care topics to help build your personal pathway to empowerment. At the end of each webcast, you will have a chance to ask questions and hear from questions from others. There is no cost to participate, but online pre-registration is required.

EdDays

EdDayRett syndrome Ed Days are designed to provide information, enrichment and connection for families, caregivers, educators, clinicians and therapists to empower our community. Topics and discussions will include: research updates, medical and therapeutic intervention strategies, state specific programs & services, communication strategies, and other unique workshops.

Our 2020 educational programming is made possible through the generous support of the following:

Previous RettEd Webcasts

Adulthood: Living & Lifestyle

Autonomic Issues in Rett Syndrome

Clinical Trial Update: December 2019

Communication

Communication Guidelines

Epilepsy

Gene Therapy: CRISPR/CAS9

Genetics

GI Issues

Gross Motor Skills

IEP Strategies for Inclusion

IEP Strategies: A Primer

Longevity in Rett Syndrome

Mini-Brains in Space

Movement Disorders

New Parents

Nutrition

Orthopedics

Pain in Rett Syndrome

Protected Tomorrows

¿Qué es el síndrome de Rett?

Research Update 2019

Research Update: September 2019

Respiratory Issues

Russia Rett Syndrome Cultural Exchange

Siblings

Sleep

Taking Care of Yourself

Walking

What is Rett Syndrome?

What’s Going Right in Their Brain?

Womanhood