2023 Rett Gazette

Help for today and hope for tomorrow. We are committed to ensuring every family facing Rett syndrome has the resources they need now and the hope for a bright future. No matter where you are on your Rett syndrome journey, know that IRSF is with you until there are solutions for ALL individuals with Rett syndrome. We are ALL IN for you.

The 2023 Rett Gazette is heading to your mailbox this September! Scroll down to check out this issue’s highlights and check back here later this month for the full digital download.

Delivery times will vary. If you haven’t received yours by September 15, please click the button below to request your copy.

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IN THIS ISSUE:

2022 Impact Report

See how your generous donor support accelerates breakthrough research discoveries & helps families thrive.

Make Your Voice Heard

Use our new Advocacy Tool to advocate for state-level access and federal funding research to help your loved one with Rett.

My Rett Ally Care Companion

Discover a better way to simplify, organize, and share your child's most important medical and care information all in one place.

Mark Your Calendar

Save the date to join us in Colorado next summer for the ASCEND 2024 Rett Syndrome National Summit. More info coming soon!

Accelerating Research

A First for Rett Syndrome!

Learn about the historic FDA approval of DAYBUE™ (trofinetide) and find resources to help decide if it's right for you.

Clinical Trial Update

Find the most recent news on research and trials towards our goal of having multiple treatments, including cures, for Rett syndrome.

$4.4M Awarded in 2022

Read about the next wave of research to get us closer to new drug options, expand genetic approaches, and improve clinical trial success.

2023 Scientific Meeting

Nearly 200 scientists and researchers came together to discuss ways to leverage learning in the lab to be deployed in the clinic.

Empowering Families

Rett Syndrome Registry™

Help unlock treatments including cures for Rett syndrome by enrolling and participating during your normal clinic visit at a COE clinic.

Transition of Care Toolkit

Check out IRSF's new Rett Syndrome Transition of Care Toolkit, a must to prepare any individual with Rett syndrome nearing adulthood.

For Healthcare Providers

Share these educational resources with your pediatrician, neurologist, or any professional involved in the treatment of your loved one.

2023 RettAway Album

Check out the photo album from the 2023 RettAway in San Antonio that brought together nearly 70 families from 23 states for some fun in the sun!

Get Involved

Give Now to End Rett

When you donate to IRSF, you’re giving hope to every child and adult with Rett syndrome. Join us in our effort - the time is now!

Raise Awareness this October

Explore the new awareness toolkit, social media assets, and more to help you increase awareness of Rett around the globe.

Ready, Set, STROLL!

Connect with local families at one of 13 in-person Strollathons and invite a friend to experience the mission with you.

Raise a Glass for Rett

Get your ticket for the virtual gala or make plans to raise your glass at one of the unique viewing parties across the country!

Rett Gazette Archive