Transition of Care Toolkit

Coming in mid-September!

IRSF’s new Rett Syndrome Transition of Care Toolkit is a must for any individual with Rett syndrome nearing adulthood. The Toolkit is designed to empower parents and guide healthcare providers through the conversations necessary to transition a loved one to adult medical care. Every journey to adulthood is different, but with this Toolkit, families can face the challenges of aging with Rett head-on thanks to the insights and learnings of Rett caregivers who have been there before.

The TOC Toolkit was developed by IRSF in collaboration with the Child Neurology Foundation as part of the ACP HVC pediatric to adult care transition project.