Jun
10
Fri
Location: Dunegrass Country Club, 200 Wild Dunes Way, Old Orchard Beach, ME 04064 The Rip it for Rett, hockey themed golf tournament is a fun way to go ALL IN for a cure. Enjoy a great round of golf on a killer course with really awesome people. What more can you ask for? Find out the details on how to get in on the fun! Join this sibling group as they raise money for IRSF in honor of their sister! Register, sponsor or donate here: http://www.ripitforrett.com/
Categories: Special Events - Golf Tournaments
Jul
26
Tue
Jul 26 @ 1:00 pm – 2:00 pm
Categories: Education Slider Webinar
Aug
1
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Ella-Foard-Charity-Golf-Classic-1.png)
The Ella Foard Foundation hosts the 12th Annual Charity Golf Classic on Monday, August 1st at Providence Country Club! Enjoy an exciting round of golf in a beautiful setting – all for a great cause!
The tournament includes 18 Holes of Captain’s Choice Golf, Coffee & Pastries upon arrival, Lunch and Awards Dinner, Raffles & Goody Bags, Skill (Luck?) Contests, and a Silent Auction!
Information & Registration Categories: Special Events - Golf Tournaments
Aug 1 @ 3:00 pm – 4:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/FDA-RettEd-1400-×-613-px.png)
Categories: Education Slider Webinar
Aug
20
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/Fill-Your-Freezer-for-Rett.png)
Categories: Special Events - General
Aug
27
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/A-Day-Fore-Rett.png)
Categories: Special Events - Golf Tournaments
Sep
27
Tue
Sep 27 @ 1:00 pm – 2:00 pm
![](https://rett.wpengine.com/wp-content/uploads/Lifecare-Planning_webevent.png)
- Legal Planning: Special Needs Trusts, Letter/Memorandum of Intent, Guardianship
- Financial Planning: How to fund a Special Needs Trust, ABLE accounts, and more
- Benefit Planning: Finding and accessing federal benefits like SSI & SSDI, Medicaid, Waivers, etc.
- Defining Your Replacement Team: What happens when you can no longer provide direct care alone?
Categories: Education Slider Webinar
Oct
8
Sat
![](https://rettsyndrome.org/wp-content/uploads/Throw-for-a-Cure.png)
Categories: Special Events - General
Oct
21
Fri
Oct 21 @ 3:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/2022-Rett-Spectrum-Series-Banner.jpg)
Categories: Ed Day Education Slider
Oct
22
Sat
Oct 22 @ 8:00 am – 4:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/RettEd-Day_KKI_Website-1400x613-1.png)
Categories: Ed Day Education Slider
Oct
29
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/Rally-for-Rett-Image.png)
Categories: Special Events - General
Nov
12
Sat
Nov 12 @ 8:00 pm – 9:00 pm
![](https://rettsyndrome.org/wp-content/uploads/RAG-Event-Listing-B.png)
Categories: Special Events - General
Dec
6
Tue
![](https://www.rettsyndrome.org/wp-content/uploads/RettEd-3-Web-Header.png)
- Paul and Janelle Jochim, parents to Jill (age 46)
- Megan Ladenburger and Mom Shanna Sowers, sister and mom to Brittany (age 34)
- Theresa Bartolotta, mom to Lisa (age 33)
- Moderator: Paige Nues, IRSF Family Empowerment Director and mom to Katie (age 20)
- Special Guest: Sheila Lullo, Special Projects Coordinator of Quality Outcomes at Clearbrook in Illinois, a provider of community-based residential options, day programs, and more to adult individuals with special needs.
Categories: Education Slider Webinar
Dec
10
Sat
Hannah’s 11th Annual Art Show for IRSF
![](https://www.rettsyndrome.org/wp-content/uploads/Hannah-Painting-2-760x425.jpg)
Categories: Special Events - General
Jan
28
Sat
Siera’s 35th Birthday Bash for IRSF
Date: Saturday, January 28th, 2023 Time: 5pm-11pm Location: St. Louis Moose Lodge 1566, 811 Michigan Ave, St Louis MI 48880 Come help us celebrate Siera’s 35th birthday while raising funds for IRSF. Enjoy an evening of entertainment, dinner & cash bar, live & silent auction and more! All ages welcome. To RSVP, please contact Lisa Rushin at: 989-285-5994. Unable to join but want to donate- you may do so here: https://rettgrassrootevents.funraise.org/fundraiser/lisa-rushin All proceeds to benefit IRSF.![](https://www.rettsyndrome.org/wp-content/uploads/Seira-Bday-2023-Flyer.jpg)
Categories: Special Events - General
Apr
24
Mon
**RESCHEDULED**
Date: Monday, April 24, 2023 Time: Registration 7:00 am ET; First flight tee off 8:30 am ET Location: Hillcrest Golf & Country Club (4011 N Boston Ave, Lubbock, TX 79415) Continental breakfast items available and lunch will be provided We invite you to take part in the First Annual Hannah’s Hope Golf Tournament rescheduled for April 24, 2023 at Hillcrest Country Club. This tournament will benefit the International Rett Syndrome Foundation in honor of Hannah Hooks. The inspiration behind our tournament is 10-year-old Hannah Hooks. Hannah lives in Lubbock and is in 5th grade at Lubbock-Cooper West Elementary. Hannah was born with a rare disease called Rett Syndrome. Rett syndrome is a rare genetic neurological disorder that leads to severe impairments, affecting nearly every aspect of the child’s life. In April of 2022 IRSF hosted their National Science and Family Summit and presented an update on a treatment for Rett Syndrome. Rett Syndrome has been treated in mice and there are multiple clinical trials going on throughout the world to bring a cure to the males and females living with Rett. A treatment for Rett will also lead to breakthroughs in many other diseases and disorders. In order to continue research, organizations like International Rett Syndrome Foundation need funds to contribute to the many companies who are seeking a treatment. INFORMATION & REGISTRATION Categories: Special Events - Golf Tournaments
Apr
28
Fri
![](https://www.rettsyndrome.org/wp-content/uploads/GreatRettShootout.jpg)
Categories: homepage Special Events - General
May
8
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Charamella-Golf_Website.png)
![](https://www.rettsyndrome.org/wp-content/uploads/Charamella-Golf-Logo.jpeg)
Categories: homepage Special Events - Golf Tournaments
Jun
9
Fri
![](https://www.rettsyndrome.org/wp-content/uploads/Rip-it-for-Rett_Website-Event-1400-×-613-px.png)
Categories: homepage Special Events - Golf Tournaments
Jun
22
Thu
![](https://www.rettsyndrome.org/wp-content/uploads/Event-Header.png)
Already registered?
Make sure to RSVP "Going" on the Facebook event page to stay up to date on deadlines, information, and to make plans to connect with other families! Sponsored by:![](https://www.rettsyndrome.org/wp-content/uploads/ACADIA-Logo-2.png)
Categories: Ed Day Education Slider
Jul
15
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/Website-Event-Calendar.png)
Categories: homepage Special Events - General
Jul
31
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Norcina-Header.png)
Categories: Special Events - Golf Tournaments
Aug
5
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/UCSF_Website-Event-Header-1400-x-613.png)
Categories: Ed Day Education Slider homepage
Sep
9
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/Fill-Your-Freezer_WebsiteC.png)
Categories: homepage Special Events - General
Sep 9 @ 9:00 am – 5:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/UTSW_Website-Event-Header-1400-x-613.png)
Categories: Ed Day Education Slider homepage
Sep
25
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Goals-for-Gracie-23_website-event.png)
Categories: homepage Special Events - Golf Tournaments
Sep
30
Sat
Sep 30 @ 9:00 am – 5:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/Montefiore_Website-Event-Header-1400-x-613.png)
Categories: Ed Day Education Slider homepage
Oct
16
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/On-the-Ridge-for-Rett-calendar-image.png)
Categories: homepage Special Events - Golf Tournaments
Oct
28
Sat
Oct 28 @ 8:00 pm – 9:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/Raise-a-Glass-Website-Header.png)
Categories: homepage Special Events - General
May
13
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Golf-Event_FB-Cover.png)
![](https://www.rettsyndrome.org/wp-content/uploads/Charamella-Golf-Logo.jpeg)
Categories: homepage Special Events - Golf Tournaments
Subscribe to filtered calendar