RettEd Day at Montefiore

The Children’s Hospital at Montefiore  |  September 30th 


A critical element to IRSF’s mission is equipping parents, caregivers, therapists and teachers with the latest information on Rett syndrome.

Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome, especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.


Date: Saturday, September 30th, 2023
Time: 9 a.m.–5 p.m. ET
The Children’s Hospital at Montefiore
3415 Bainbridge Ave., Bronx, NY 10467
Cherkasky Auditorium

Fee: $10/per person
FREE for individuals with Rett syndrome and children 12 & under.

RettEd Day Attendee 2022


Registration opens at 8:30 a.m. The meeting will consist of a full day of programming and speakers from 9 a.m. to 3:15 p.m., followed by a social activity until 5 p.m.



Aleksandra Djukic, MD, PhD

Director, Tri-State Rett Syndrome Center, Montefiore Medical Center

Albena Patroneva, MD, MBA

Senior Vice President, Clinical Development, Neurogene

Jeannie Lee, MD, PhD

Physician & Professor, Massachusetts General Hospital & Harvard Medical School

Additional Information

Register Now

Contact Paige Nues [email protected] with questions.


Thank you to our organizers and generous supporters:


Thank you to our 2023 Empowerment Sponsor, Acadia Pharmaceuticals, for helping IRSF provide educational resources and support to families affected by Rett syndrome.