The Children’s Hospital at Montefiore | September 30th
A critical element to IRSF’s mission is equipping parents, caregivers, therapists and teachers with the latest information on Rett syndrome.
Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome, especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.
Date: Saturday, September 30th, 2023
Time: 9 a.m.–5 p.m. ET
The Children’s Hospital at Montefiore
3415 Bainbridge Ave., Bronx, NY 10467
Fee: $10/per person
FREE for individuals with Rett syndrome and children 12 & under.
FORMAT & AGENDA
Registration opens at 8:30 a.m. The meeting will consist of a full day of to be announced programming and speakers from 9 a.m. to 3:30 p.m., followed by a social activity until 5 p.m.
Aleksandra Djukic, MD, PhD
Director, Tri-State Rett Syndrome Center, Montefiore Medical Center
Albena Patroneva, MD, MBA
Senior Vice President, Clinical Development, Neurogene
Jeannie Lee, MD, PhD
Physician & Professor, Massachusetts General Hospital & Harvard Medical School
We encourage parents and caregivers only to attend for focused learning and networking; however, onsite care can be made available for those with Rett and younger siblings. Please make sure to include this request during online registration. If onsite care is required, you must register by September 1st.
Rooms at the nearby Hampton Inn & Suites Yonkers are available at a negotiated rate of $139/night. This rate will be honored +/- 1 day surrounding the RettEd. Book your room as part of our block below.
Please note that this hotel does not offer shuttle service to CHAM.
There is free street parking available around CHAM on a first come, first served basis. While not guaranteed, street parking is more available on weekends.
You can also park in the parking garage at the Greene Medical Arts Pavilion across the street from the CHAM main entrance. The entrance is on Wayne Avenue and it’s open daily 6 a.m. to 11 p.m. Rates:
- Up to 1 hour: $7
- Up to 2 hours: $9
- Up to 6 hours: $13
- Up to 12 hours: $17
- After 12 hours: $21
More information coming soon!
Confirmed registrations will not be refunded.
IRSF is committed to providing quality programming at our RettEd Days. Please note: speakers and agenda are subject to change. In the event of a speaker cancellation, every effort to find a suitable replacement will be made. For more information, please contact [email protected].
Contact Paige Nues [email protected] with questions.
Thank you to our organizers and generous supporters:
Thank you to our 2023 Empowerment Sponsor, Acadia Pharmaceuticals, for helping IRSF provide educational resources and support to families affected by Rett syndrome.