RettEd Day at Kennedy Krieger Institute

October 22, 2022
Kennedy Krieger Institute  |  Baltimore, MD



A critical element to IRSF’s mission is equipping parents, caregivers, therapists and teachers with the latest information on Rett.

Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.



Date: Saturday, October 22nd, 2022
Time: 8:00 a.m. – 4:00 p.m. ET
Location: Kennedy Krieger Institute
1741 Ashland Avenue, Baltimore, MD 21205
Arnold J. Capute, MD, MPH Conference Center – Eighth Floor
*Free parking can be found in the parking garage. Access to the building is located on the 2nd floor of the garage. 

Fee: $10/per person
FREE for individuals with Rett syndrome and others under the age of 5.
Max Registration: 3 people per family (see below)
Includes: Presentations, interactive panel discussion, continental breakfast and lunch

Key speakers & Agenda

The morning session will concentrate on research and science. The afternoon sessions will focus on therapies and quality of life. Speakers include:

  • Constance Smith-Hicks, MD, PhD
    Director, Rett Syndrome Clinic at Kennedy Krieger Institute
  • Dominique Pichard, MD
    Chief Science Officer, International Rett Syndrome Foundation
  • Sujatha Kannan, MD
    Richard J. Traystman Endowed Chair for Anesthesiology Research; Co-director of the Pediatric Neurocritical Care Program; Research Scientist at Kennedy Krieger Institute; Director of the Pediatric Brain Injury Program at the Center for Nanomedicine

Additional Details

  • Kennedy Krieger COVID Policy:
    • Mask-wearing indoors will be required.
    • If feeling any COVID-like symptoms, please do not attend. All registered onsite attendees will be emailed approximately 10 days prior to the event to check Covid exposure status. You must attest to the statements being sent, in order to attend the event.
    • Due to Infectious Disease protocols on room occupancy, we are asking that you limit registration to a maximum of 3 people per family.
  • A casual reception will follow the day’s presentations.
  • A personal care space will be available for those with Rett syndrome, but there is no childcare offered.
  • Children are welcome to attend, but we encourage you to exit the room for breaks as needed out of respect for all attendees trying to listen and learn. 


Residence Inn Baltimore at The Johns Hopkins Medical Campus
800 N Wolfe St, Baltimore, MD 21205
(443) 524-8400

Group Rate
The group rate expired on Oct 6, but rooms may still be available. Please contact Paige Nues directly for hotel booking at [email protected].  

Social media

Make sure to follow the event on Facebook for important updates leading up to the event!


Contact Paige Nues [email protected] with questions.

Thank you to our organizers and generous supporters:

Thank you to our 2022 Empowerment Sponsor, Acadia Pharmaceuticals, for helping IRSF provide educational resources and support to families affected by Rett syndrome.