UCSF Oakland Children’s/Camp Arroyo | August 5th
A critical element to IRSF’s mission is equipping parents, caregivers, therapists and teachers with the latest information on Rett syndrome.
Our RettEd Days are for everyone wanting to connect with experts in the field of Rett syndrome, especially families, caregivers, educators, clinicians, and therapists. Participants will enjoy a rich and informative day of topics and discussions covering research updates, medical and therapeutic intervention strategies, communication strategies, and more.
DETAILS
Date: Saturday, August 5th, 2023
Time: 10 a.m.–4 p.m. PT (registration starts at 9 a.m.)
Location:
Camp Arroyo
(5535 Arroyo Rd, Livermore, CA 94550)
Fee: $10/per person
FREE for individuals with Rett syndrome and children 12 & under.
FORMAT & AGENDA
We encourage families to attend this IRSF RettEd Day for focused learning and networking, as well as a fun and enriched picnic-style therapeutic environment. Registration will open at 9 a.m. with programming beginning at 10 a.m. Family activities of your choice will be available from 1-4 p.m.
Speakers
Jennifer Martelle Tu, MD, PhD
Medical Director, Rett and Related Disorders CoE Clinic, UCSF Benioff Children’s Hospital Oakland
Janine LaSalle, PhD
Principal Investigator, The LaSalle Lab, UC Davis
Julian Halmai, PhD
Post Doc, The Fink Lab, UC Davis
Additional Information
Rooms at the nearby Courtyard by Marriott Livermore are available at a negotiated rate of $146/night. To secure this rate as part of our room block, you must book by Tuesday, August 1st. Book your room as part of our block below.
To request an ADA room, please call the hotel directly at 925-243-1000 to book your room. Make sure to mention you are part of the “RettEd Day” group for the discounted rate.
Camp Arroyo is located just 45 minutes from Oakland in Livermore, California, and is home to rolling hills and beautiful views. When you arrive, volunteers will be onsite to direct you and assist with unloading.
Onsite parking is free.
A cafeteria-style lunch and afternoon snacks are included with your registration. There will be options that are vegetarian, nut-free, and gluten-free, but if you have specific dietary restrictions, please email Paige Nues directly at [email protected].
Confirmed registrations will not be refunded.
IRSF is committed to providing quality programming at our RettEd Days. Please note: speakers and agenda are subject to change. In the event of a speaker cancellation, every effort to find a suitable replacement will be made. For more information, please contact [email protected].
Contact Paige Nues [email protected] with questions.
Thank you to our organizers and generous supporters:
Thank you to our 2023 Empowerment Sponsor, Acadia Pharmaceuticals, for helping IRSF provide educational resources and support to families affected by Rett syndrome.
