Visit Improving Upper Extremity Motor Skills in Persons w/Rett Syndrome Using Virtual Reality Computer Games Website 1-815-450-0069 Kourtney This is a study designed to test the use of a movement sensor as a method of playing Internet Virtual Reality games as therapy for individuals with Rett syndrome. Contact Kourtney Mraz [email protected].
Clinic Name: Rett and Related Disorders Clinic Medical Directors: Art Beisang, MD & Tim Feyma, MD Clinic Address: 200 University Ave. East, St. Paul, MN 55051 Clinic Phone: (651) 228-6455 Clinic Email: [email protected] Part of the IRSF Center of Excellence Network
Visit Biobanking of Rett Syndrome and Related Disorders Website The purpose of this study is to advance understanding of the natural history of Rett syndrome (RTT), MECP2-duplication disorder (MECP2 Dup), RTT-related disorders including CDKL5, FOXG1, and individuals with MECP2 mutations who do not have RTT. Samples with DNA will be collected. This study is being … Read More
The Rett Clinic at Children’s Colorado was established in 2011 thanks to a generous gift from the Rocky Mountain Rett Association. Many doctors and specialists come together to provide coordinated care and convenience for the child and family (about 14 providers are at the first appointment). The Rett Clinic is located in the Multidisciplinary Clinic at Children’s Colorado, … Read More
Clinic Name: Rett and Related Disorders Clinic Medical Director: Connie Smith-Hicks, MD, PhD Clinic Address: 801 North Broadway, Baltimore, MD 21205 Clinic Phone: (443) 923-2778 Clinic Email: [email protected] Part of the IRSF Center of Excellence Network CLINIC WEBSITE