Clinic Name: Vinaya Rett Syndrome and Related Spectrum Disorders Clinic Medical Director: Shannon Standridge, DO, MPH Clinic Address: 3333 Burnet Avenue, Cincinnati, OH 45229 Clinic Phone: (513) 636-4222 Part of the IRSF Center of Excellence Network CLINIC WEBSITE
Doernbecher Children’s Hospital 700 S.W. Campus Drive, Portland, OR 97239 Primary Contact: [email protected] Tel: 503 346 0640 LEARN MORE
Visit Biobanking of Rett Syndrome and Related Disorders Website The purpose of this study is to advance understanding of the natural history of Rett syndrome (RTT), MECP2-duplication disorder (MECP2 Dup), RTT-related disorders including CDKL5, FOXG1, and individuals with MECP2 mutations who do not have RTT. Samples with DNA will be collected. This study will be … Read More
Medical Director: Aleksandra Djukic, MD PhD Clinic Address: 3415 Bainbridge Ave, Floor 4, Bronx, NY 10467 Clinic Phone: (718) 920-4378 Clinic Email: [email protected] Part of the IRSF Center of Excellence Network CLINIC WEBSITE
Clinic Name: Rett Spectrum Clinic at Washington University School of Medicine and St. Louis Children’s Hospital Medical Directors: Robin Ryther, MD, PhD & Judy Weisenberg, MD Clinic Address: St. Louis Children’s Hospital – One Children’s Place, Suite 2130, St. Louis, MO 63110 Clinic Phone: (314) 454-6120 Part of the IRSF Center of Excellence Network CLINIC WEBSITE