St. Louis Children’s Hospital

St. Louis Children’s Hospital

Friday, July 26, 2019

Visit St. Louis Children’s Hospital Website 1-314-454-6120 Appointments, Wendy Sanders – Care Coordinator The St. Louis Children’s Hospital’s Rett Spectrum Clinic is a collaboration between Washington University School of Medicine and St. Louis Children’s Hospital.  Within a clinic visit, patients and their families will meet with several caregivers including neurology, therapy, and nutrition along with other … Read More

Rush University Medical Center

Thursday, July 25, 2019

Clinic Name: Rush Rett Care Program Medical Directors: Peter Heydemann, MD & Collen Buhrfiend, MD Clinic Address: 1725 W Harrison St., Chicago, IL 60612 Clinic Phone: (312) 942-3034 Part of the IRSF Center of Excellence Network CLINIC WEBSITE

Biobanking of Rett Syndrome and Related Disorders

Thursday, July 25, 2019

Visit Biobanking of Rett Syndrome and Related Disorders Website The purpose of this study is to advance understanding of the natural history of Rett syndrome (RTT), MECP2-duplication disorder (MECP2 Dup), RTT-related disorders including CDKL5, FOXG1, and individuals with MECP2 mutations who do not have RTT. Samples with DNA will be collected. Rush University Medical Center … Read More

Evaluation of the Efficacy, Safety, and Tolerability of Sarizotan in Rett Syndrome With Respiratory Symptoms

Thursday, July 25, 2019

Visit Evaluation of the Efficacy, Safety, and Tolerability of Sarizotan in Rett Syndrome With Respiratory Symptoms Website This study evaluates the safety, tolerability and efficacy of Sarizotan in reducing respiratory abnormalities in Rett syndrome.  Eligibility criteria include girls or boys age 13 or above. Rush University Medical Center For study information, contact Susan Rhode  [email protected] or call 1-312-942-0079.