Texas Children’s Hospital (Blue Bird Circle Rett Center)

Texas Children’s Hospital (Blue Bird Circle Rett Center)

Tuesday, July 30, 2019

Visit Texas Children’s Hospital (Blue Bird Circle Rett Center) Website 1-832-822-1260 Located in Texas Children’s Hospital, the center specializes in the care of patients with Rett syndrome. An appointment includes a comprehensive, multidisciplinary evaluation.  Specialists are available to evaluate problems such as scoliosis, chewing/swallowing dysfunction, failure to thrive, gastroesophageal reflux and motor dysfunction.

Biobanking of Rett Syndrome and Related Disorders

Tuesday, July 30, 2019

Visit Biobanking of Rett Syndrome and Related Disorders Website The purpose of this study is to advance understanding of the natural history of Rett syndrome (RTT), MECP2-duplication disorder (MECP2 Dup), RTT-related disorders including CDKL5, FOXG1, and individuals with MECP2 mutations who do not have RTT. Samples with DNA will be collected. Vanderbilt University For more … Read More

Biobanking of Rett Syndrome and Related Disorders

Tuesday, July 30, 2019

Visit Biobanking of Rett Syndrome and Related Disorders Website The purpose of this study is to advance understanding of the natural history of Rett syndrome (RTT), MECP2-duplication disorder (MECP2 Dup), RTT-related disorders including CDKL5, FOXG1, and individuals with MECP2 mutations who do not have RTT. Samples with DNA will be collected. Greenwood Genetic Center – 1-888-442-4363 … Read More

Biobanking of Rett Syndrome and Related Disorders

Tuesday, July 30, 2019

Visit Biobanking of Rett Syndrome and Related Disorders Website The purpose of this study is to advance understanding of the natural history of Rett syndrome (RTT), MECP2-duplication disorder (MECP2 Dup), RTT-related disorders including CDKL5, FOXG1, and individuals with MECP2 mutations who do not have RTT. Samples with DNA will be collected. Children’s Hospital of Philadelphia … Read More

Children’s Hospital of Philadelphia

Tuesday, July 30, 2019

Visit Children’s Hospital of Philadelphia Website Children’s Hospital has pediatric neurologists with advanced training and experience in treating the full spectrum of pediatric neurologic disorders. 1-267-426-0122