Rett Syndrome Clinic at Cincinnati Children’s Hospital

Rett Syndrome Clinic at Cincinnati Children’s Hospital

Tuesday, July 30, 2019

Visit Rett Syndrome Clinic at Cincinnati Children’s Hospital Website 1-513-636-4222 The clinic has a core team that includes a pediatric neurologist, behavioral/developmental medicine physician, nutritionist, social worker, occupational therapist and speech-language pathologist. All see the patient during the initial evaluation, then the team develops an individualized care plan.

Biobanking of Rett Syndrome and Related Disorders

Friday, July 26, 2019

Visit Biobanking of Rett Syndrome and Related Disorders Website The purpose of this study is to advance understanding of the natural history of Rett syndrome (RTT), MECP2-duplication disorder (MECP2 Dup), RTT-related disorders including CDKL5, FOXG1, and individuals with MECP2 mutations who do not have RTT. Samples with DNA will be collected.  This study will be … Read More

St. Louis Children’s Hospital

Friday, July 26, 2019

Visit St. Louis Children’s Hospital Website 1-314-454-6120 Appointments, Wendy Sanders – Care Coordinator The St. Louis Children’s Hospital’s Rett Spectrum Clinic is a collaboration between Washington University School of Medicine and St. Louis Children’s Hospital.  Within a clinic visit, patients and their families will meet with several caregivers including neurology, therapy, and nutrition along with other … Read More