Children’s Hospital Colorado

Children’s Hospital Colorado

Wednesday, July 24, 2019

Clinic Name: Rett Clinic Medical Director: Tim Benke, MD, PhD Clinic Address: 13123 E. 16th Ave, Aurora, CO 80045 Clinic Phone: (720) 777-4363 Clinic Email: [email protected] Part of the IRSF Center of Excellence Network CLINIC WEBSITE

Biobanking of Rett Syndrome and Related Disorders

Tuesday, July 23, 2019

Visit Biobanking of Rett Syndrome and Related Disorders Website 1-617-355-8994 The purpose of this study is to advance understanding of the natural history of Rett syndrome (RTT), MECP2-duplication disorder (MECP2 Dup), RTT-related disorders including CDKL5, FOXG1, and individuals with MECP2 mutations who do not have RTT. Samples with DNA will be collected. This study will be … Read More

Travel Assistance for NHS Sites

Tuesday, July 23, 2019

Travel Assistance for NHS Sites – 1-781-333-1593 Marriott is working on establishing discounts for hotels near our clinical trial sites.  For more information, contact Ashley Lucchese, Marriott Sales Executive [email protected] Nearby hotels include:  Residence Inn Boston Back Bay/Fenway & Courtyard Boston Brookline

Children’s Hospital Los Angeles

Tuesday, July 23, 2019

Clinic Name: Children’s Hospital Los Angeles Rett Syndrome Clinic Department: Division of Neurology Medical Director: Payal Gu, MD Clinic Address: 4650 Sunset Blvd., Los Angeles, CA 90027 Clinic Phone: (323) 361-2471 Clinic Email: [email protected] Part of the IRSF Center of Excellence Network CLINIC WEBSITE