NORD Salutes RDCRN Scientists

NIH Rare Diseases Clinical Research Network (RDCRN) and Coalition of Patient Advocacy Groups (CPAG)

Partners in Progress Awards

"NORD salutes the scientists of RDCRN for their recognition of the importance of partnership with the patient community. We salute the patient advocates of CPAG for their dedication to advancing knowledge of rare diseases. And we honor the leadership of NIH and, in particular, the NIH Office of Rare Diseases Research, for early recognition of the importance of investigator/advocate collaboration."

On May 15th, 2012, the National Organization of Rare Diseases (NORD) during the annual Partners in Progress Celebrations honored the RDCRN team (CPAG, Scientists of RDCRN and the NIH). The awards were received by Michelle Manion (Chairperson, CPAG), Dr. Alan Percy (Chairperson, RDCRN Steering Committee) and Dr. Steve Groft (Director, ORDR, NCATS, NIH).

For information about NIH Office of Rare Disease Research (ORDR) visit: