2022 Rett Gazette

Coming to your mailbox this October – our 2022 Rett Gazette is here! Find out how we are continuing to accelerate vital, innovative research while helping families thrive, no matter where they are on their Rett Journey. This year’s issue highlights how a world without Rett syndrome requires a powerful synergy between families and research, and how we can go ALL IN, together, to make that vision a reality.

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IN THIS ISSUE:

Go ALL IN for a Cure

Learn how to you can go ALL IN with IRSF to advance treatments and a cure for those with Rett syndrome. Join us in our effort - the time is now!

2021 Impact Report

See how generous donor support accelerates breakthrough research discoveries & helps families thrive through IRSF resources.

Raise Awareness for Rett

Explore the new awareness toolkit, social media assets, and more to help you increase awareness of Rett syndrome around the globe.

2022 RettEd Lineup

Sign up to join our Rett community for a live webinar or an in-person RettEd Day, and find out more about the 2023 RettAway!

Accelerating Research

Clinical Trials Update

There are more than 20 companies investing in Rett syndrome research - more than ever before! Click to view their progress.

2022 Scientific Meeting Recap

More than 150 Rett experts from around the world gathered in Nashville to advance the next wave of advancements in Rett research.

COE Network Grows

IRSF is proud to welcome new Rett syndrome Centers of Excellence, now 18 clinics strong and providing best-in-class care.

Clinical Trial Committee

Launched this year, the CTC provides pharmaceutical companies access to expert advice to enhance clinical trial success.

Empowering Families

Every Step of the Way

Wherever you are on your Rett Journey, IRSF is with you. Learn about resources available to help you thrive.

ASCEND 2022 National Summit

Read the event recap and access the ASCEND Resource Library for session presentations, videos, and more.

Communication Specialists

Learn more about the just launched Communication in Rett Syndrome Continuing Education Program.

Rett Syndrome Registry™

Enroll today! Contact your COE to join the only registry that combines data from Rett clinicians AND caregivers.

Get Involved

Shop Partners for a Cause

Support our mission by shopping our partners who give back a portion of proceeds to IRSF every time you shop.

Raise a Glass for Rett

Get your ticket for the virtual gala or raise your glass at one the viewing parties across the country!

Get out and Stroll

Connect with local families at an in-person Strollathon and invite a friend to experience the mission with you.

Upcoming Events

View our calendar to find upcoming events happening around the country, both in-person and virtually. Find one near you!

Rett Gazette Archive