The National Health Council (NHC) Standard of Excellence program recently appointed IRSF to its prestigious membership.

The NHC is a 100-year-old organization whose mission is to provide a united voice for the 160 million people living with chronic diseases and disabilities. Created by and for patient organizations, NHC envisions a society in which all people have access to quality, affordable health care to promote the best possible health outcomes for patients and their family caregivers.

“This is a great honor,” shares Melissa Kennedy, IRSF CEO, “It recognizes IRSF’s leadership in advancing treatments and cures for patients as well as our success adhering to the highest degree of stewardship, accountability, and transparency.”

Through the Standards of Excellence program, IRSF joins more than 140 national health-related organizations and businesses. These entities include the nation’s leading patient organizations, nonprofits including the provider, research, and family caregiver communities; and businesses representing biopharmaceuticals, devices, diagnostics, generic drugs, and payers.

“Our participation in this program represents an incredibly valuable opportunity,” Kennedy says, “It increases the visibility of the whole Rett community. It helps us ensure that our families’ cause is heard in national discussions on patient engagement, reducing health care costs, and ensuring that the health care system provides equitable, inclusive, and high-value care.”