Events are one of the best ways to get involved with Rettsyndrome.org and play an integral part in funding research for treatment and a cure for Rett syndrome. Events are fun, help raise awareness, and connect you to our community of amazing families. Participating in an event (or starting your own) will have a direct impact on the lives of many people affected by Rett syndrome. Whether you tee off at a golf tournament or dance at a gala, there is something for everyone, all year long! Find an event near you or contact us to start your own!
WHEN: Saturday, September 19, 2020 From the serious runner to the recreational runner, to family members and friends of all ages the Run For Rett is an event you don’t want to miss. Make a difference in the life of those affected by Rett Syndrome and join us for the Run For Rett 5K Run/Walk & 1 Mile Fun Run. Date: Sat, Sep 19, 2020 Are you having difficulty understanding the current state of clinical care recommendations and appointments? Maybe you’re wondering which clinical trials and future research look the most promising? And what about other local resources for your loved one and family? We’ll be sharing insights on this, and much more during our upcoming Town Hall Meeting – live-streamed – on Saturday, September 19, 2020, at 10am -11:30am (MT). Join us as Rettsyndrome.org, the Rett Clinic team at Children’s Hospital Colorado, and members from the Rocky Mountain Rett Association (RMRA) discuss clinical care recommendations and appointments, clinical trials, the research process, and family empowerment opportunities. Join us for the 15th Annual Portland Strollathon: Virtual Edition! After thoughtful consideration, we have decided to go VIRTUAL for the Portland Stroll! Sunday, September 20th: any time! Date: Thu, Sep 24, 2020 Are you having difficulty understanding the current state of clinical care recommendations and appointments? Maybe you’re wondering which clinical trials and future research look the most promising? And what about other local resources for your loved one and family? We’ll be sharing insights on this, and much more during our upcoming Town Hall Meeting – live-streamed – on Thursday, September 24, 2020, at 12pm -1:30pm (CDT). Join us as Rettsyndrome.org presents the Rett Clinic team at St. Louis Children’s Hospital to discuss clinical care recommendations and appointments, clinical trials, the research process, and family empowerment opportunities. Join us for the 17th Annual Cincinnati Strollathon- VIRTUALLY! Be sure to follow us on Facebook to stay up to date on our fun virtual activities: facebook.com/Cincinnati-Tri-State-Strollathon Date: September, 26th, 2020 Date: Wed, Sep 30, 2020 Are you having difficulty understanding the current state of clinical care recommendations and appointments? Maybe you’re wondering which clinical trials and future research look the most promising? And what about other local resources for your loved one and family? We’ll be sharing insights on this, and much more during our upcoming Town Hall Meeting – live-streamed – on Wednesday, September 30, 2020, at 12pm -1:30pm (CT). Join us as Rettsyndrome.org and the Rett Clinic team at Texas Children’s Hospital discuss clinical care recommendations and appointments, clinical trials, the research process, and family empowerment opportunities. Everyone can participate in this year’s Rett Ride Across America – no matter where you live or what your skill set! Whether you are 5 or 95, you can ride to end Rett! Whether you ride a bike, scooter, surfboard, horse, or motorcycle, you can participate! Join as an adult, kid, or grab the family for a fun activity. Your support helps get us one day closer to a world without Rett syndrome. A weekend in which participants complete an ultra marathon of their choosing–from 50K to 100 miles, or from 6 to 48 hours. They can stretch their event over the month of October if desired. Proceeds from the event go to Rettsyndrome.org and the Rett Spectrum Clinic at St. Louis Children’s Hospital! Register for RGRVUW by purchasing a race shirt! Jay Murry will be doing his ultra-marathon in his local sub-division, the Vineyards. The Rett Gets Rocked headquarters will be located at: 756 Napa Lane, St. Charles MO 63304 on Sat 10/3 from 12pm- Sun 10/4 at 8pm. To donate to Jay, please click here. To follow along on Facebook, visit: https://www.facebook.com/24hourjaymurry/ For more information, contact Jay at jmsproductions3@gmail.com Join us for the 14th Annual Minnesota Virtual Strollathon! At Rettsyndrome.org, the health and well-being of those in our community are of utmost importance. Due to the Covid-19 pandemic, we will be going Virtual this year! We have some tricks up our sleeve to make this a fun & engaging event. Date: Sunday, October 4th, 2020
LOCATION: Busse Woods, Grove 28
Elk Grove Village, IL
Contact info: Diane Ross (diross62@aol.com).Rett Syndrome Clinic at Children’s Hospital Colorado Town Hall, feat. Dr. Benke, Tristen Dinkle & More
Time: 10:00 AM – 11:30 AM
Stroll at your leisure through your neighborhood, local park or hop on the treadmill!
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Event Chair: Lacey & Leigh Calvert Washington University Rett Spectrum Clinic Town Hall, feat. Drs. Ryther, Dr. Weisenberg & More
Time: 12:00 PM – 1:30 PM CDT17th Annual Cincinnati Strollathon: Virtual Edition
At Rettsyndrome.org, the health and well-being of those in our community are of utmost importance. Due to the COVID-19 pandemic, we have decided to host this year’s Stroll VIRTUALLY. We have some tricks up our sleeve to provide a fun and engaging virtual experience!
Location: your neighborhood, walking trail or treadmill!
Event Chairs: Brittney Gibson, Jim Magato, & Jennifer MagatoThe Blue Bird Circle Rett Center at Texas Children’s Hospital Town Hall, feat. Dr. Glaze, Dr. Suter & Dr. Motil
Time: 12:00 PM – 1:30 PM CDTHere are 3 ways to participate in this year’s Rett Ride:
Rett Gets Rocked Ultramarathon
14th Annual Minnesota Virtual Strollathon
Join us for the 12th Annual New Jersey Strollathon- VIRTUALLY!
Location: Your neighborhood, local walking trail or treadmill!
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Event Chair: Leslie Greenfield (leslieg417@gmail.com)