Events are one of the best ways to get involved with Rettsyndrome.org and play an integral part in funding research for treatment and a cure for Rett syndrome. Events are fun, help raise awareness, and connect you to our community of amazing families. Participating in an event (or starting your own) will have a direct impact on the lives of many people affected by Rett syndrome. Whether you tee off at a golf tournament or dance at a gala, there is something for everyone, all year long! Find an event near you or contact us to start your own!
Please join us as Tim Benke, MD PhD, Director, Rett syndrome Clinic, Children’s Hospital Colorado, and Rettsyndrome.org Medical Advisor and Paige Nues, Director of Family Empowerment at Rettsyndrome.org to explore the clinical trials landscape outlook for 2020. This live webcast will be especially helpful to caregivers who are wondering if participating in a clinical trial could be an option for their family and how to become research-ready. We will discuss what clinical trials are enrolling, about to enroll, or have closed enrollment. We will also discuss enrollment criteria, what it means to participate in a trial, and hear from a panelist of parent trailblazers whose children have participated in a Rett syndrome clinical trial to hear how they did it. Questions and comments submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session. RettEd Webinars are a free resource designed to empower families affected by Rett syndrome and their care teams. Date: Saturday, January 25th, 2020 The People’s United Center at Quinnipiac, 305 Sherman Ave, Hamden, CT 06518 For Questions please contact Nicole McAmis at nicole.mcamis@quinnipiac.edu Help us celebrate Cammy’s 11th birthday by attending and raising a ton of money to find a cure so she can drink with you in Sidebar on her 21st birthday! WHEN | March 21, 2020 5PM – 10PM All you can eat and open bar including craft beer, wine, cocktails from 5-10PM.
Rett Syndrome Awareness Basketball Game: Quinnipiac vs Fairfield
Time: 4:00pm
MAAC Tournament Kick Off, Rett Syndrome Awareness, Camper Reunion Day
WHERE | Sidebar, 221 N LaSalle St., Chicago, IL
Food provided by Buona Beef including beef, sausage, pasta and salad.