Events are one of the best ways to get involved with International Rett Syndrome Foundation and play an integral part in funding research for treatment and a cure for Rett syndrome. Events are fun, help raise awareness, and connect you to our community of amazing families. Participating in an event (or starting your own) will have a direct impact on the lives of many people affected by Rett syndrome. Whether you tee off at a golf tournament or dance at a gala, there is something for everyone, all year long! Find an event near you or contact us to start your own!
When: Saturday, May 8th – Sunday, May 16th Our responsibility is to the health and well being of our participants and volunteers for the Run For Rett. The decision to change to a virtual event was thoughtfully made with extreme concern for our entire Rett syndrome community and our dedicated participants and volunteers. Thank you for your understanding, cooperation and support. We encourage you to register online. It’s easy to register at Raceroster.com/46429 Date: June 5, 2021 Join our community around the world by lacing up your shoes and hitting your local neighborhood, trail (social distancing required), or treadmill. Run, walk, skip, or stroll to end Rett syndrome! No registration fee; however, fundraising is encouraged. Once $200 has been raised, we will send you a Rett Racer t-shirt. Share your photos on race day to our Facebook event or your personal fundraising page! Use the hashtag #rettracers. Please join us for the legendary Samantha Corpus Golf Tournament, On Tuesday July 13th at The Blackhawk Country Club, as we will be hosting our 15th and Final Tournament. Due to the Pandemic we had to postpone the tournament last year. Save the Date to join us for another Trivia Night with Rettsyndrome.org! You’ll have a chance to compete for prizes, test your trivia knowledge & support Rett syndrome at the same time! Registration & more details will be available soon! Join us for the 10th Annual Nebraska Strollathon! Date: Sunday, September 19th, 2021 Join us for the 5th Annual Iowa Strollathon- VIRTUALLY! We are so excited to share that the 5th Annual Iowa Strollathon will be happening this year and we have so many fun ways for you to join in! Due to the Covid-19 pandemic, we have decided to get a little creative in order to continue the momentum to raise funds & awareness to get us one day closer to a world without Rett! This year, we are encouraging you to Stroll your own way- this can be ANYTHING you think of. Some examples could include; a t-shirt fundraiser, a neighborhood Stroll, a garage sale, chili cook-off competition….you name it and you can turn it into a way to raise funds & awareness for Rett. We are here to help you with whatever you come up with and there may be a prize for most creative Stroll . We will be working hard to make this a fun & engaging experience. Be sure to follow us on Facebook for exciting updates! We plan to host a celebration on Saturday, October 2nd- TBD on if it will be virtual or in person! Join us for the 15th Annual Minnesota Strollathon! Fundraising pages now open to create teams & personal pages for the Strollathon. Join us for the 2nd Annual South Carolina Strollathon! Fundraising pages now open to create teams & personal pages for the Strollathon. Join us for the 14th Annual St. Louis Strollathon Fall 2021! Fundraising pages now open to create teams & personal pages for the Strollathon. Dates: 28th Sept to 1st Oct 2022 9th World Rett Syndrome Congress has been postponed due to COVID until 2022. Congress venue Presenters Work continues on building the Congress website https://rettworldcongress.org to a point where it will meet the information needs of potential attendees. Online registration for the Congress is now open which may be of particular interest to Australian families who have included, or wish to include, coverage of the registration fees in their National Disability Insurance Scheme (NDIS) plans. https://rettworldcongress.org An online abstract submission portal has been completed but won’t be available for submissions until early 2022.Run for Rett
WE ARE GOING VIRTUAL AGAIN!!!
Where: Any time and any place
How you participate is totally up to you. You can run the 5K, walk a mile or sit in your recliner.
No matter what you choose you are a winner because you are making a difference in the lives of those impacted by Rett syndrome.
Follow us on Facebook:
Click here – Run Rett 2021The 2nd Annual Summer Virtual 5K is Back!
You Can’t Miss the Final Samantha Corpus Golf Tournament
Samantha’s Farewell 15
July 13, 2021
In spite of all the uncertainty the outpouring of love and support continued and many of you asked and hoped that we would be able to conclude this epic event in grand style.
Please note that we plan to gather in-person at this time but will be monitoring Covid-19 accordingly and may move to a virtual event if needed.
Location: ERC Building, Yanney Park, 2020 W 11th Street, Kearney NE 68845
Registration: 10am, Stroll: 11am-1pm
Fundraising pages now open to create teams & personal pages for the Strollathon.
Cheers to 5 years of the Iowa Stroll!
We miss you and can’t wait to be together again. We hope to have a live, in-person Stroll in October 2021- more details to come! Until then, stay safe & be well.
Event Chair: Mary Kallstrom
Location: Savage Environmental Learning Center, Savage MN
We hope to safely gather in-person this Fall and will keep you updated as the event becomes closer!
Event Chairs: Stephanie Winckler, Danyell Flowers
Follow us on Facebook for more event info & updates.
We miss you and can’t wait to be together again. We hope to have a live, in-person Stroll on Saturday, October 23rd, 2021- more details to come! Until then, stay safe & be well.
Event Chairs: Joyce Opinsky, Amy Kreher & Amanda Sommer ([email protected])
Follow us on Facebook for continued updates.
9th World Rett Syndrome Congress in Australia
The QT Hotel, Gold Coast, which is located in Surfers Paradise, Queensland, will remain as the Congress venue.
Presenters who originally accepted RSAA’s invitation to speak at the Congress are being notified of the latest postponement and will be reinvited. Hopefully, the revised dates will not affect their availability.
Congress website