Sep
9
Sat
Date: Saturday, September 9, 2023 Time: 10:00 a.m. - 2 p.m. Eastern Location: Buffalo Creek Nature Park (154 Monroe Road, Sarver, PA 16055) Event Chairs: Terre Gray and Kati Gray (Contact Email) REGISTER & MORE INFORMATION The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Categories: homepage Special Events - Strollathons
![](https://www.rettsyndrome.org/wp-content/uploads/Nebraska-1.png)
Categories: homepage Special Events - Strollathons
Sep
23
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/RettConnect_Website-Event-Calendar.png)
Categories: homepage Special Events - Strollathons
Sep
25
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Goals-for-Gracie-23_website-event.png)
Categories: homepage Special Events - Golf Tournaments
Sep
30
Sat
Sep 30 @ 9:00 am – 5:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/Montefiore_Website-Event-Header-1400-x-613.png)
Categories: Ed Day Education Slider homepage
Date: Saturday, September 30, 2023 Time: 10:00 a.m. - 1 p.m. Eastern Location: East Goshen Township Park (1661 Paoli Pike, West Chester, PA 19380) Event Chairs: Siobhann Bennett (Contact Email) REGISTER & MORE INFORMATION The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Categories: homepage Special Events - Strollathons
Oct
1
Sun
Oct 1 @ 2:00 pm – 5:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/Minnesota-1.png)
Categories: homepage Special Events - Strollathons
Oct
7
Sat
Oct 7 @ 9:00 am – 12:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/New-Jersey-1.png)
Categories: homepage Special Events - Strollathons
![](https://www.rettsyndrome.org/wp-content/uploads/Maryland-1.png)
Categories: homepage Special Events - Strollathons
![](https://www.rettsyndrome.org/wp-content/uploads/St.-Louis.png)
Categories: homepage Special Events - Strollathons
Oct
16
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/On-the-Ridge-for-Rett-calendar-image.png)
Categories: homepage Special Events - Golf Tournaments
Oct
21
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/So-Cal-1.png)
Categories: homepage Special Events - Strollathons
Oct
22
Sun
![](https://www.rettsyndrome.org/wp-content/uploads/Dallas-1.png)
Categories: homepage Special Events - Strollathons
Oct
28
Sat
Oct 28 @ 8:00 pm – 9:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/Raise-a-Glass-Website-Header.png)
Categories: homepage Special Events - General
Nov
4
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/Florida.png)
Categories: homepage Special Events - Strollathons
![](https://www.rettsyndrome.org/wp-content/uploads/NorCal.png)
Categories: homepage Special Events - Strollathons
Nov
9
Thu
![](https://www.rettsyndrome.org/wp-content/uploads/Cocktails-and-Murder.png)
Nov
28
Tue
![](https://www.rettsyndrome.org/wp-content/uploads/GT-Header-website.png)
Jan
22
Mon
Parents of newly diagnosed children with Rett syndrome need a safe space to share their experiences and discuss resources, equipment, toys, tips, and more.
Moderated by IRSF staff and supported by volunteer parents, this Facebook Group is for parents of children who were diagnosed with Rett syndrome between 2022 and today. Join us for our first Zoom Meet-Up session to meet other parents in the same life stage, make friendships and connections, and find helpful resources and support during this challenging time.
To get the link to join, please visit the Facebook Group or request to join by answering the membership questions.
Apr
20
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/MSRF-RettEd-Day.png)
- The Midwest Rett Syndrome Foundation (MRSF) welcomes families and caregivers for a day of learning and networking. We have real treatments coming to help our children!
- This full day of adult conversation will focus on research updates and local opportunities to get the most out of our Center of Excellence at Gillette Children’s.
- There will be information tables, giveaways and special introductions throughout the day!
Apr
26
Fri
![](https://www.rettsyndrome.org/wp-content/uploads/GreatRettShootout.jpg)
May
4
Sat
Date: Saturday, May 4, 2024 Time: 7 a.m. Registration | 8:30 a.m. 5K | 9 a.m. 1-Mile Fun Run Location: Busse Woods - Grove 26, Elk Grove, IL The race will start and finish at Grove #26. Enter Busse Woods off of Arlington Heights Road, south of Higgins Road in Elk Grove Village. From the serious runner to the recreational runner to family members and friends of all ages, the 25th annual Run For Rett is an event you don’t want to miss. Make a difference in the life of those affected by Rett syndrome and join us for the Run For Rett 5K Run/Walk & 1 Mile Fun Run. *First 200 participants receive an official Run For Rett t-shirt* INFORMATION & REGISTRATION
May
13
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Golf-Event_FB-Cover.png)
![](https://www.rettsyndrome.org/wp-content/uploads/Charamella-Golf-Logo.jpeg)
Categories: homepage Special Events - Golf Tournaments
Jun
18
Tue
![](https://www.rettsyndrome.org/wp-content/uploads/Event-Header_ScineceMtg_2024.png)
![](https://www.rettsyndrome.org/wp-content/uploads/Acadia_Reg_rgb_primary_gradient.png)
![](https://www.rettsyndrome.org/wp-content/uploads/NeuroGene_Logo_®_Dark-Green-01_transparent-background.png)
![](https://www.rettsyndrome.org/wp-content/uploads/Taysha_Inline_Full-Color_RGB_300.png)
Bronze Sponsor:
DepYmed
Categories: homepage Special Events - Non-Fundraising Events
Jun
19
Wed
Jun 19 – Jun 22 all-day
![](https://www.rettsyndrome.org/wp-content/uploads/ASCEND24_Event-Header_1400x613.png)
Thank you to our sponsors:
Presenting Sponsor:![](https://www.rettsyndrome.org/wp-content/uploads/Acadia_Reg_rgb_primary_gradient.png)
![](https://www.rettsyndrome.org/wp-content/uploads/NeuroGene_Logo_®_Dark-Green-01_transparent-background.png)
![](https://www.rettsyndrome.org/wp-content/uploads/Taysha_Inline_Full-Color_RGB_300.png)
Bronze Sponsor (Family Conference):
Anovo
Jun
28
Fri
Date: Friday, June 28th, 2024 Location: Dunegrass Golf Club (65 Wild Dunes Way, Old Orchard Beach, ME 04064) Time: 7 a.m. Registration | 8 a.m. Scramble The Rip it for Rett hockey-themed golf tournament is a blast (if we do say so ourselves), a great round of golf on a great course with really awesome people. What more can you ask for? Find out the details on how to get in on the fun! INFORMATION & REGISTRATION
Jul
8
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Goals-Fore-Gracie-PNG.png)
![](https://www.rettsyndrome.org/wp-content/uploads/Family-photo.jpeg)
Categories: homepage Special Events - General
Jul
13
Sat
Date: Saturday, July 13, 2024 Time: 12-4 p.m. Location: IBEW Local 1 (5850 Elizabeth Ave, St Louis, MO 63110) Channel your inner rockstar in POUND® - an exhilarating full body workout inspired by the infectious, energizing, and sweat-dripping fun of playing the drums. Designed for all fitness levels and easily modifiable, POUND® provides the perfect atmosphere for rockstars of all ages and abilities to let loose! Come rock out workout, enjoy refreshments, vendors, a silent auction, and more! Learn More & Register Today!
Categories: homepage Special Events - General
Jul
20
Sat
Date: Saturday, July 20, 2024 Time: 2-5 p.m. ET Location: Henmick Farm & Brewery (4380 N Old State Rd, Delaware, OH 43015)
Join us for this FREE, family-friendly event in support of finding a cure for Rett syndrome. We will have raffles, a silent auction, a live auction (with items from our daughters living with Rett), live music, food trucks, a kids' area with crafts, games, and music! INFORMATION & REGISTRATION
![](https://www.rettsyndrome.org/wp-content/uploads/FFAC_Logo_2024-2.png)
Categories: homepage Special Events - General
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