Dec
6
Tue
![](https://www.rettsyndrome.org/wp-content/uploads/RettEd-3-Web-Header.png)
- Paul and Janelle Jochim, parents to Jill (age 46)
- Megan Ladenburger and Mom Shanna Sowers, sister and mom to Brittany (age 34)
- Theresa Bartolotta, mom to Lisa (age 33)
- Moderator: Paige Nues, IRSF Family Empowerment Director and mom to Katie (age 20)
- Special Guest: Sheila Lullo, Special Projects Coordinator of Quality Outcomes at Clearbrook in Illinois, a provider of community-based residential options, day programs, and more to adult individuals with special needs.
Categories: Education Slider Webinar
Dec
10
Sat
Hannah’s 11th Annual Art Show for IRSF
![](https://www.rettsyndrome.org/wp-content/uploads/Hannah-Painting-2-760x425.jpg)
Categories: Special Events - General
Jan
28
Sat
Siera’s 35th Birthday Bash for IRSF
Date: Saturday, January 28th, 2023 Time: 5pm-11pm Location: St. Louis Moose Lodge 1566, 811 Michigan Ave, St Louis MI 48880 Come help us celebrate Siera’s 35th birthday while raising funds for IRSF. Enjoy an evening of entertainment, dinner & cash bar, live & silent auction and more! All ages welcome. To RSVP, please contact Lisa Rushin at: 989-285-5994. Unable to join but want to donate- you may do so here: https://rettgrassrootevents.funraise.org/fundraiser/lisa-rushin All proceeds to benefit IRSF.![](https://www.rettsyndrome.org/wp-content/uploads/Seira-Bday-2023-Flyer.jpg)
Categories: Special Events - General
Apr
24
Mon
**RESCHEDULED**
Date: Monday, April 24, 2023 Time: Registration 7:00 am ET; First flight tee off 8:30 am ET Location: Hillcrest Golf & Country Club (4011 N Boston Ave, Lubbock, TX 79415) Continental breakfast items available and lunch will be provided We invite you to take part in the First Annual Hannah’s Hope Golf Tournament rescheduled for April 24, 2023 at Hillcrest Country Club. This tournament will benefit the International Rett Syndrome Foundation in honor of Hannah Hooks. The inspiration behind our tournament is 10-year-old Hannah Hooks. Hannah lives in Lubbock and is in 5th grade at Lubbock-Cooper West Elementary. Hannah was born with a rare disease called Rett Syndrome. Rett syndrome is a rare genetic neurological disorder that leads to severe impairments, affecting nearly every aspect of the child’s life. In April of 2022 IRSF hosted their National Science and Family Summit and presented an update on a treatment for Rett Syndrome. Rett Syndrome has been treated in mice and there are multiple clinical trials going on throughout the world to bring a cure to the males and females living with Rett. A treatment for Rett will also lead to breakthroughs in many other diseases and disorders. In order to continue research, organizations like International Rett Syndrome Foundation need funds to contribute to the many companies who are seeking a treatment. INFORMATION & REGISTRATION Categories: Special Events - Golf Tournaments
Apr
28
Fri
![](https://www.rettsyndrome.org/wp-content/uploads/GreatRettShootout.jpg)
Categories: homepage Special Events - General
May
8
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Charamella-Golf_Website.png)
![](https://www.rettsyndrome.org/wp-content/uploads/Charamella-Golf-Logo.jpeg)
Categories: homepage Special Events - Golf Tournaments
Jun
9
Fri
![](https://www.rettsyndrome.org/wp-content/uploads/Rip-it-for-Rett_Website-Event-1400-×-613-px.png)
Categories: homepage Special Events - Golf Tournaments
Jun
22
Thu
![](https://www.rettsyndrome.org/wp-content/uploads/Event-Header.png)
Already registered?
Make sure to RSVP "Going" on the Facebook event page to stay up to date on deadlines, information, and to make plans to connect with other families! Sponsored by:![](https://www.rettsyndrome.org/wp-content/uploads/ACADIA-Logo-2.png)
Categories: Ed Day Education Slider
Jul
15
Sat
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Categories: homepage Special Events - General
Jul
31
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Norcina-Header.png)
Categories: Special Events - Golf Tournaments
Aug
5
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/UCSF_Website-Event-Header-1400-x-613.png)
Categories: Ed Day Education Slider homepage
Sep
9
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/Fill-Your-Freezer_WebsiteC.png)
Categories: homepage Special Events - General
Sep 9 @ 9:00 am – 5:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/UTSW_Website-Event-Header-1400-x-613.png)
Categories: Ed Day Education Slider homepage
Date: Saturday, September 9, 2023 Time: 10:00 a.m. - 2 p.m. Eastern Location: Buffalo Creek Nature Park (154 Monroe Road, Sarver, PA 16055) Event Chairs: Terre Gray and Kati Gray (Contact Email) REGISTER & MORE INFORMATION The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Categories: homepage Special Events - Strollathons
![](https://www.rettsyndrome.org/wp-content/uploads/Nebraska-1.png)
Categories: homepage Special Events - Strollathons
Sep
23
Sat
Categories: homepage Special Events - Strollathons
Sep
25
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Goals-for-Gracie-23_website-event.png)
Categories: homepage Special Events - Golf Tournaments
Sep
30
Sat
Sep 30 @ 9:00 am – 5:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/Montefiore_Website-Event-Header-1400-x-613.png)
Categories: Ed Day Education Slider homepage
Date: Saturday, September 30, 2023 Time: 10:00 a.m. - 1 p.m. Eastern Location: East Goshen Township Park (1661 Paoli Pike, West Chester, PA 19380) Event Chairs: Siobhann Bennett (Contact Email) REGISTER & MORE INFORMATION The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.
Categories: homepage Special Events - Strollathons
Oct
1
Sun
Oct 1 @ 2:00 pm – 5:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/Minnesota-1.png)
Categories: homepage Special Events - Strollathons
Oct
7
Sat
Oct 7 @ 9:00 am – 12:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/New-Jersey-1.png)
Categories: homepage Special Events - Strollathons
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Categories: homepage Special Events - Strollathons
![](https://www.rettsyndrome.org/wp-content/uploads/St.-Louis.png)
Categories: homepage Special Events - Strollathons
Oct
16
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/On-the-Ridge-for-Rett-calendar-image.png)
Categories: homepage Special Events - Golf Tournaments
Oct
21
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/So-Cal-1.png)
Categories: homepage Special Events - Strollathons
Oct
22
Sun
![](https://www.rettsyndrome.org/wp-content/uploads/Dallas-1.png)
Categories: homepage Special Events - Strollathons
Oct
28
Sat
Oct 28 @ 8:00 pm – 9:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/Raise-a-Glass-Website-Header.png)
Categories: homepage Special Events - General
Nov
4
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/Florida.png)
Categories: homepage Special Events - Strollathons
![](https://www.rettsyndrome.org/wp-content/uploads/NorCal.png)
Categories: homepage Special Events - Strollathons
May
13
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Golf-Event_FB-Cover.png)
![](https://www.rettsyndrome.org/wp-content/uploads/Charamella-Golf-Logo.jpeg)
Categories: homepage Special Events - Golf Tournaments
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