Rev It for Rett Syndrome

Rev It for Rett Syndrome

Monday, July 26, 2021
When: September 12, 2021 @ 1:00 pm
Where: Legacy 925, 925 N Lapeer Rd, Oxford, MI

Rev It for Rett Syndrome In Honor of Maylee Stump Date: Saturday, September 12th Time: 1pm-8pm Location: Legacy 925 925 North Lapeer Td. Oxford, MI Details: Car show, 925 Social Bar & Food Trucks, Urban … Read More

Run for Rett 5K

Tuesday, July 20, 2021
When: October 9, 2021 @ 7:00 am

2nd Annual Run for Rett 5k Date: Saturday, October 9th, 2021 Location: Bradenton, FL We are very excited to have the Second Annual Run for Rett 5K to help spread awareness about Rett Syndrome. This … Read More

ASCEND 2022 Rett Syndrome National Summit

Friday, June 25, 2021
When: April 27, 2022 – April 30, 2022 all-day

We’re gearing up for the ASCEND 2022 Rett Syndrome National Summit in Nashville! GAYLORD OPRYLAND RESORT & CONVENTION CENTER April 27-30, 2022 Designed to unite us as a community, this event will bring together parents, … Read More

RettEd: Gene Therapy in Rare Disease

Wednesday, June 23, 2021
When: July 28, 2021 @ 1:00 pm

As a rare disease community, we can learn a lot from others further down the road of gene replacement therapy. In this informative conversation with IRSF’s CSO, Dr. Dominique Pichard, you’ll hear from P.J. Brooks, … Read More

Scramble for a Cure

Tuesday, June 15, 2021
When: July 25, 2021 @ 7:30 am
Where: Chief Golf Couse, 5085 Shanty Creek Rd, Bellaire, MI 49615

Scramble for a Cure Date: July 25th, 2021 Details: 18 hole scramble at The Chief Golf Course 7:30am coffee & muffins 8:30am shotgun start Lunch provided by The Pelican’s Nest Proceeds go to IRSF Information … Read More