Rev It for Rett Syndrome In Honor of Maylee Stump Date: Saturday, September 12th Time: 1pm-8pm Location: Legacy 925 925 North Lapeer Td. Oxford, MI Details: Car show, 925 Social Bar & Food Trucks, Urban … Read More
2nd Annual Run for Rett 5k Date: Saturday, October 9th, 2021 Location: Bradenton, FL We are very excited to have the Second Annual Run for Rett 5K to help spread awareness about Rett Syndrome. This … Read More
We’re gearing up for the ASCEND 2022 Rett Syndrome National Summit in Nashville! GAYLORD OPRYLAND RESORT & CONVENTION CENTER April 27-30, 2022 Designed to unite us as a community, this event will bring together parents, … Read More
As a rare disease community, we can learn a lot from others further down the road of gene replacement therapy. In this informative conversation with IRSF’s CSO, Dr. Dominique Pichard, you’ll hear from P.J. Brooks, … Read More
Scramble for a Cure Date: July 25th, 2021 Details: 18 hole scramble at The Chief Golf Course 7:30am coffee & muffins 8:30am shotgun start Lunch provided by The Pelican’s Nest Proceeds go to IRSF Information … Read More