News
Press Releases
2019
July 29, 2019 – Rettsyndrome.org Appoints New Board Members
June 4, 2019 – Rettsyndrome.org Funds Research to Provide Hope for Females and Males Affected by MECP2 Mutation
May 3, 2019 – Rettsyndrome.org Appoints Joseph Horrigan, MD to Board of Directors
March 27, 2019 – Postive Phase 2 Study Results of Trofinetide in Pediatric Rett Syndrome Published in Neurology
March 18, 2019 – Anavex Life Sciences Announces First Patient Dosed in Phase 2 Clinical Trial of ANAVEX®2-73
2018
December 7, 2018 – International Rett Syndrome Foundation Receives Highest Honor
October 19, 2018 – FDA Approves Phase 2 Clinical Trial of ANAVEX®2-73 in Patients with Rett Syndrome
September 7, 2018 – Stepfather cycling across country to draw awareness for rare Rett syndrome
July 23, 2018 – New Mouse Model in Rett Syndrome Reveals Promise
July 13, 2018 – Rettsyndrome.org Announces Timothy Benke, MD, PhD, to Role as Rettsyndrome.org Medical Advisor
Rett Gazette
Our bi-annual newsletter keeps you up to do date on Rett syndrome research, what’s happening in our community and ways you can get involved. Stay up to date!
2019: Spring
2018: Spring | Fall
2017: Fall | Spring
2016: Summer
2015: Winter | Summer
2014: Winter | Summer
2013: Winter | Spring