News
Rett Gazette
Our Rett Gazette is NOW available as a downloadable PDF!
In it, you’ll find how we’re confronting COVID-19 challenges head on! You’ll be introduced to our Rett Research Ready program that provides an important new search tool—My Rett Trial Finder—as well as educational materials and support. Our Chief Science Officer Dr. Dominique Picard shares an update on gene modifying therapy research. As always, we want you to be informed about the critical research that’s aimed at improving the lives of those with Rett as we reach toward finding a cure.
We’ve also included our 2019 Impact Report so that you can see how donations are used to empower families and accelerate full spectrum research.
Click below to download your free copy now.
Previous Rett Gazettes
2019: Spring | Fall 2018: Spring | Fall 2017: Fall | Spring
2016: Summer 2015: Winter | Summer 2014: Winter | Summer
2013: Winter | Spring
Press Releases
2021
May 4, 2021 – IRSF Recognizes 15 Clinics With New Center Of Excellence Awards
2020
July 15, 2020 – Rettsyndrome.org Launches Rett Research Ready™ and myRett Trial Finder
2019
September 17, 2019 – Rettsyndrome.org Announces New Chief Science Officer with Rett Syndrome Connection
July 29, 2019 – Rettsyndrome.org Appoints New Board Members
June 4, 2019 – Rettsyndrome.org Funds Research to Provide Hope for Females and Males Affected by MECP2 Mutation
May 3, 2019 – Rettsyndrome.org Appoints Joseph Horrigan, MD to Board of Directors
March 27, 2019 – Postive Phase 2 Study Results of Trofinetide in Pediatric Rett Syndrome Published in Neurology
March 18, 2019 – Anavex Life Sciences Announces First Patient Dosed in Phase 2 Clinical Trial of ANAVEX®2-73
2018
December 7, 2018 – International Rett Syndrome Foundation Receives Highest Honor
October 19, 2018 – FDA Approves Phase 2 Clinical Trial of ANAVEX®2-73 in Patients with Rett Syndrome
September 7, 2018 – Stepfather cycling across country to draw awareness for rare Rett syndrome
July 23, 2018 – New Mouse Model in Rett Syndrome Reveals Promise
July 13, 2018 – Rettsyndrome.org Announces Timothy Benke, MD, PhD, to Role as Rettsyndrome.org Medical Advisor
Impact Reports
These concise reports highlight our annual accomplishments in research, fundraising and family empowerment.