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Rett Gazette Summer 2020Rett Gazette

Our Rett Gazette is NOW available as a downloadable PDF!

In it, you’ll find how we’re confronting COVID-19 challenges head on! You’ll be introduced to our Rett Research Ready program that provides an important new search tool—My Rett Trial Finder—as well as educational materials and support. Our Chief Science Officer Dr. Dominique Picard shares an update on gene modifying therapy research. As always, we want you to be informed about the critical research that’s aimed at improving the lives of those with Rett as we reach toward finding a cure.

We’ve also included our 2019 Impact Report so that you can see how donations are used to empower families and accelerate full spectrum research.

Click below to download your free copy now.

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Previous Rett Gazettes

2019: Spring | Fall       2018: Spring | Fall             2017: Fall | Spring
2016: Summer             2015: Winter | Summer     2014: Winter | Summer
2013: Winter | Spring

Press Releases

2019

July 29, 2019 – Rettsyndrome.org Appoints New Board Members

June 4, 2019 – Rettsyndrome.org Funds Research to Provide Hope for Females and Males Affected by MECP2 Mutation

May 3, 2019 – Rettsyndrome.org Appoints Joseph Horrigan, MD to Board of Directors

March 27, 2019 – Postive Phase 2 Study Results of Trofinetide in Pediatric Rett Syndrome Published in Neurology

March 18, 2019 – Anavex Life Sciences Announces First Patient Dosed in Phase 2 Clinical Trial of ANAVEX®2-73

2018

December 7, 2018  – International Rett Syndrome Foundation Receives Highest Honor

October 19, 2018 – FDA Approves Phase 2 Clinical Trial of ANAVEX®2-73 in Patients with Rett Syndrome

September 7, 2018 – Stepfather cycling across country to draw awareness for rare Rett syndrome 

July 23, 2018 – New Mouse Model in Rett Syndrome Reveals Promise

July 13, 2018 –  Rettsyndrome.org Announces Timothy Benke, MD, PhD, to Role as Rettsyndrome.org Medical Advisor

Impact Reports

These concise reports highlight our annual accomplishments in research, fundraising and family empowerment.

2018 | 2017 | 2016 | 2015 | 2014