News

Press Releases

2019

July 29, 2019 – Rettsyndrome.org Appoints New Board Members

June 4, 2019 – Rettsyndrome.org Funds Research to Provide Hope for Females and Males Affected by MECP2 Mutation

May 3, 2019 – Rettsyndrome.org Appoints Joseph Horrigan, MD to Board of Directors

March 27, 2019 – Postive Phase 2 Study Results of Trofinetide in Pediatric Rett Syndrome Published in Neurology

March 18, 2019 – Anavex Life Sciences Announces First Patient Dosed in Phase 2 Clinical Trial of ANAVEX®2-73

2018

December 7, 2018  – International Rett Syndrome Foundation Receives Highest Honor

October 19, 2018 – FDA Approves Phase 2 Clinical Trial of ANAVEX®2-73 in Patients with Rett Syndrome

September 7, 2018 – Stepfather cycling across country to draw awareness for rare Rett syndrome 

July 23, 2018 – New Mouse Model in Rett Syndrome Reveals Promise

July 13, 2018 –  Rettsyndrome.org Announces Timothy Benke, MD, PhD, to Role as Rettsyndrome.org Medical Advisor

Rett Gazette

Our bi-annual newsletter keeps you up to do date on Rett syndrome research, what’s happening in our community and ways you can get involved. Stay up to date!

2019: Spring | Fall
2018: Spring | Fall
2017: Fall | Spring
2016: Summer
2015: Winter | Summer
2014: Winter | Summer
2013: Winter | Spring

Impact Reports

These concise reports highlight our annual accomplishments in research, fundraising and family empowerment.

2018 | 2017 | 2016 | 2015 | 2014