Rett Gazette Summer 2021Rett Gazette

Our Rett Gazette is NOW available as a downloadable PDF!

In it, you’ll find how we’re confronting COVID-19 challenges head on! You’ll be introduced to our Rett Research Ready program that provides an important new search tool—My Rett Trial Finder—as well as educational materials and support. Our Chief Science Officer Dr. Dominique Picard shares an update on gene modifying therapy research. As always, we want you to be informed about the critical research that’s aimed at improving the lives of those with Rett as we reach toward finding a cure.

We’ve also included our 2019 Impact Report so that you can see how donations are used to empower families and accelerate full spectrum research.

Click below to download your free copy now.

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Previous Rett Gazettes

2019: Spring | Fall       2018: Spring | Fall             2017: Fall | Spring
2016: Summer             2015: Winter | Summer     2014: Winter | Summer
2013: Winter | Spring

Press Releases


October 18, 2021 – HIVE Networks and IRSF Partner to Advance Research and Treatment for Rett Syndrome

September 10, 2021 – IRSF Appointed to NHC Standard of Excellence Program

July 27, 2021 – International Rett Syndrome Foundation Appoints New Board Member

May 4, 2021 – IRSF Recognizes 15 Clinics With New Center Of Excellence Awards


July 15, 2020 – Launches Rett Research Ready™ and myRett Trial Finder

May 19, 2020 – International Rett Syndrome Foundation Receives Greater Cincinnati Foundation and United Way of Greater Cincinnati’s COVID-19 Regional Response Fund Grant


September 17, 2019 – Announces New Chief Science Officer with Rett Syndrome Connection

July 29, 2019 – Appoints New Board Members

June 4, 2019 – Funds Research to Provide Hope for Females and Males Affected by MECP2 Mutation

May 3, 2019 – Appoints Joseph Horrigan, MD to Board of Directors

March 27, 2019 – Postive Phase 2 Study Results of Trofinetide in Pediatric Rett Syndrome Published in Neurology

March 18, 2019 – Anavex Life Sciences Announces First Patient Dosed in Phase 2 Clinical Trial of ANAVEX®2-73


December 7, 2018  – International Rett Syndrome Foundation Receives Highest Honor

October 19, 2018 – FDA Approves Phase 2 Clinical Trial of ANAVEX®2-73 in Patients with Rett Syndrome

September 7, 2018 – Stepfather cycling across country to draw awareness for rare Rett syndrome 

July 23, 2018 – New Mouse Model in Rett Syndrome Reveals Promise

July 13, 2018 – Announces Timothy Benke, MD, PhD, to Role as Medical Advisor

Impact Reports

These concise reports highlight our annual accomplishments in research, fundraising and family empowerment.

2020 | 2019 | 2018 | 2017 | 2016 | 2015 | 2014

We’re Hiring!

The International Rett Syndrome Foundation (IRSF) is looking for a passionate storyteller and marketer to advance our mission of accelerating research and empowering families affected by Rett syndrome.


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