Lorem ipsum dolor sit amet, et unum docendi nam, ea mei iriure insolens, nec te prima invenire. At brute lorem adolescens usu, vis ne clita alterum. Dicta animal facilisi duo cu. Ridens pertinax conceptam eam ex. Eum no dicant melius definitionem, duo ne vero molestie invidunt.
Mei qualisque adolescens reprimique ea, sit tempor invenire at. Id atqui aliquip mel, ei tibique minimum eum, ex pri aliquip persecuti appellantur. Nulla conclusionemque eos ei, et usu animal integre volumus, quidam suscipit molestiae eos ea. Nec soleat concludaturque ea, quodsi dolores suavitate sed at, ea alia sonet elitr duo. Fabellas adolescens pro ea. Quot lorem dicam pri ex, qui an tritani perfecto.
Ut copiosae signiferumque sed, pri ad alii debitis prodesset, vis ea elit augue volumus. Nonumy impedit reprehendunt vel cu, illud audiam nec ne. Et nec nisl libris, nec ex aperiri oportere temporibus, quo nihil numquam ut. Eu habemus deleniti singulis duo. Mei melius intellegam ad.
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Te fastidii adolescens ius, est ea integre forensibus eloquentiam. Nihil quaeque eos cu, nec et duis illum primis, ridens tibique atomorum quo ne. Possit salutatus deseruisse pro ut. In sea posse oratio temporibus, quot natum dicit duo no, sed perfecto sadipscing ex. At soluta legimus reformidans cum, ferri definitionem ut eos.
Te fastidii adolescens ius, est ea integre forensibus eloquentiam. Nihil quaeque eos cu, nec et duis illum primis, ridens tibique atomorum quo ne. Possit salutatus deseruisse pro ut. In sea posse oratio temporibus, quot natum dicit duo no, sed perfecto sadipscing ex. At soluta legimus reformidans cum, ferri definitionem ut eos.
Lorem ipsum dolor sit amet, et unum docendi nam, ea mei iriure insolens, nec te prima invenire. At brute lorem adolescens usu, vis ne clita alterum. Dicta animal facilisi duo cu. Ridens pertinax conceptam eam ex. Eum no dicant melius definitionem, duo ne vero molestie invidunt.
Mei qualisque adolescens reprimique ea, sit tempor invenire at. Id atqui aliquip mel, ei tibique minimum eum, ex pri aliquip persecuti appellantur. Nulla conclusionemque eos ei, et usu animal integre volumus, quidam suscipit molestiae eos ea. Nec soleat concludaturque ea, quodsi dolores suavitate sed at, ea alia sonet elitr duo. Fabellas adolescens pro ea. Quot lorem dicam pri ex, qui an tritani perfecto.
Dr. Dominique Pichard, IRSF Chief Science Officer Get ready for the next wave of research targeting treatments and cures for Rett syndrome. IRSF is making it happen. “Because Rett syndrome is a rare disorder, our Foundation’s investments strongly influence the direction and pace of Rett research, as well as the potential treatment options that come … Read More
Melissa Kennedy, Chief Executive Officer On December 6, the Rett syndrome community received some very encouraging news: Acadia Pharmaceuticals reported that top-line results for its Lavender Phase 3 clinical trial for trofinetide showed significant improvement over placebo. With these positive findings, Acadia will request a pre-New Drug Application meeting with the FDA in the first quarter … Read More
As the COVID pandemic continues with surges and new variants, we have asked IRSF Medical Advisor Dr. Tim Benke, Rett Clinic Medical Director at Children’s Hospital Colorado, to provide information related to COVID-19 to keep our families and community healthy and safe at this time. Vaccinations: We continue to advise: unless told otherwise by their … Read More
– Trofinetide met co-primary efficacy endpoints demonstrating statistically significant improvement over placebo in the Rett Syndrome Behaviour Questionnaire (RSBQ) (p=0.0175) and the Clinical Global Impression of Improvement (CGI-I) (p=0.0030) – Trofinetide met key secondary endpoint demonstrating statistically significant improvement over placebo in CSBS-DP-IT–Social (p=0.0064), caregiver scale of ability to communicate – Pre-New Drug Application meeting … Read More
Hive Networks today announced a multi-year partnership with the International Rett Syndrome Foundation to provide a digital health platform to support the Rett community. Rett syndrome is a rare disease caused by a genetic mutation that affects 1 in 10,000 females and even fewer males. Hive Networks is a digital health company that lets patients … Read More
Lorem ipsum dolor sit amet, et unum docendi nam, ea mei iriure insolens, nec te prima invenire. At brute lorem adolescens usu, vis ne clita alterum. Dicta animal facilisi duo cu. Ridens pertinax conceptam eam ex. Eum no dicant melius definitionem, duo ne vero molestie invidunt.
Mei qualisque adolescens reprimique ea, sit tempor invenire at. Id atqui aliquip mel, ei tibique minimum eum, ex pri aliquip persecuti appellantur. Nulla conclusionemque eos ei, et usu animal integre volumus, quidam suscipit molestiae eos ea. Nec soleat concludaturque ea, quodsi dolores suavitate sed at, ea alia sonet elitr duo. Fabellas adolescens pro ea. Quot lorem dicam pri ex, qui an tritani perfecto.
Ut copiosae signiferumque sed, pri ad alii debitis prodesset, vis ea elit augue volumus. Nonumy impedit reprehendunt vel cu, illud audiam nec ne. Et nec nisl libris, nec ex aperiri oportere temporibus, quo nihil numquam ut. Eu habemus deleniti singulis duo. Mei melius intellegam ad.
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Mea clita ceteros reprehendunt ad, et mei docendi recteque, nec saepe malorum quaerendum ei. Ut wisi ceteros has, porro noster facilisis ex nam, hinc tantas ea eos. Persius eruditi ut mea, graecis salutatus conclusionemque id pro. Eu nec graeci aliquip. Eos ex esse lorem alterum, et utinam putent mei, ei imperdiet cotidieque vim. Fierent honestatis eu his, cu consequat assueverit has, justo nihil referrentur cu eam.
Mea clita ceteros reprehendunt ad, et mei docendi recteque, nec saepe malorum quaerendum ei. Ut wisi ceteros has, porro noster facilisis ex nam, hinc tantas ea eos. Persius eruditi ut mea, graecis salutatus conclusionemque id pro. Eu nec graeci aliquip. Eos ex esse lorem alterum, et utinam putent mei, ei imperdiet cotidieque vim. Fierent honestatis eu his, cu consequat assueverit has, justo nihil referrentur cu eam.
Mea clita ceteros reprehendunt ad, et mei docendi recteque, nec saepe malorum quaerendum ei. Ut wisi ceteros has, porro noster facilisis ex nam, hinc tantas ea eos. Persius eruditi ut mea, graecis salutatus conclusionemque id pro. Eu nec graeci aliquip. Eos ex esse lorem alterum, et utinam putent mei, ei imperdiet cotidieque vim. Fierent honestatis eu his, cu consequat assueverit has, justo nihil referrentur cu eam.
Mea clita ceteros reprehendunt ad, et mei docendi recteque, nec saepe malorum quaerendum ei. Ut wisi ceteros has, porro noster facilisis ex nam, hinc tantas ea eos. Persius eruditi ut mea, graecis salutatus conclusionemque id pro. Eu nec graeci aliquip. Eos ex esse lorem alterum, et utinam putent mei, ei imperdiet cotidieque vim. Fierent honestatis eu his, cu consequat assueverit has, justo nihil referrentur cu eam.
| unum docendi | Lorem ipsum | Lorem ipsum |
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| Lorem ipsum dolor sit amet, et unum docendi nam | Lorem ipsum dolor sit amet, et unum docendi nam | Lorem ipsum dolor sit amet, et unum docendi nam |
| Lorem ipsum dolor sit amet, et unum docendi nam | Lorem ipsum dolor sit amet, et unum docendi nam | Lorem ipsum dolor sit amet, et unum docendi nam |
| Lorem ipsum dolor sit amet, et unum docendi nam | Lorem ipsum dolor sit amet, et unum docendi nam | Lorem ipsum dolor sit amet, et unum docendi nam |
Lorem ipsum dolor sit amet, et unum docendi nam, ea mei iriure insolens, nec te prima invenire. At brute lorem adolescens usu, vis ne clita alterum. Dicta animal facilisi duo cu. Ridens pertinax conceptam eam ex. Eum no dicant melius definitionem, du
Lorem ipsum dolor sit amet, et unum docendi nam, ea mei iriure insolens, nec te prima invenire. At brute lorem adolescens usu, vis ne clita alterum. Dicta animal facilisi duo cu. Ridens pertinax conceptam eam ex.
Lorem ipsum dolor sit amet, et unum docendi nam, ea mei iriure insolens, nec te prima invenire. At brute lorem adolescens usu, vis ne clita alterum. Dicta animal facilisi duo cu. Ridens pertinax conceptam eam ex. Eum no dicant melius definitionem, du
Lorem ipsum dolor sit amet, consectetur adipiscing elit. Phasellus eu massa nisl. Maecenas eget enim vitae lectus bibendum malesuada a id urna. Pellentesque convallis felis et nibh gravida, vitae bibendum lacus blandit. Fusce pharetra ac nisl ac sagi
Date: Saturday, May 4, 2024 Time: 7 a.m. Registration | 8:30 a.m. 5K | 9 a.m. 1-Mile Fun Run Location:...
Learn MoreDate: Monday, May 13, 2024 Time: Registration 11:00 am | Dinner 5 pm Location:Westover Country Club (401 South Schuykill Ave,...
Learn MoreDate: June 18-19, 2024 Time: All Day Location: Westminster, Colorado LEARN MORE The research community is invited to join us in...
Learn MoreDesigned to unite us as a community, this event will bring together parents, families, clinicians, researchers, and Rett organizations around...
Learn MoreDate: Friday, June 28th, 2024 Location: Dunegrass Golf Club (65 Wild Dunes Way, Old Orchard Beach, ME 04064) Time: 7...
Learn MoreDate: Monday, July 8, 2024 Time: Registration 9 a.m. ET | Shotgun Start 10:30 a.m. ET Location: Thousand Oaks Golf Club...
Learn MoreDate: Saturday, July 13, 2024 Time: 12-4 p.m. Location: IBEW Local 1 (5850 Elizabeth Ave, St Louis, MO 63110) Channel...
Learn MoreDate: Saturday, July 20, 2024 Time: 2-5 p.m. ET Location: Henmick Farm & Brewery (4380 N Old State Rd, Delaware,...
Learn MoreDate: Saturday, September 7, 2024 Time: 10:00 a.m. ET Location: Buffalo Creek Nature Park (154 Monroe Road, Sarver, PA 16055)...
Learn MoreDate: Saturday, September 21, 2024 Time: TBD Location: Olathe Community Center (1205 E Kansas City Rd, Olathe, KS 66061) More...
Learn MoreDate: Saturday, September 21, 2024 Time: 10:00 a.m. - 1 p.m. ET Location: Marshbank Park (2805 Hiller Road, West Bloomfield,...
Learn MoreDate: Saturday, September 28, 2024 Time: 11 a.m. CT Location: Yanney Park (2020 W 11th St, Kearney, NE 68845) Event...
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