Get Involved

"There is nothing more gratifying than being able to raise funds to advance the goals of the Foundation. It doesn't matter if it is a bake sale, a Strollathon or a Benefit, just do what you feel comfortable doing and it will be a success."

- Gordy Rich, OH

Together, we can change lives

Partner with Rettsyndrome.org to help us treat Rett syndrome and open the doors to treating autism and other neurological disorders.

Plan a Fundraiser Support a Fundraiser

 

Our signature fundraisers

Total Raised (Year to Date): $702,355.47

Support a Strollathon

Strollathons are Rettsyndrome.org's signature fundraising events that bring families and communities together to fundraise.

See the upcoming Strollathons around the world

Total Raised (Year to Date): $8,714.00

Donate to a Racer!

Rett Racers is one of Rettsyndrome.org's signature fundraising programs. Volunteers from around the country fundraise as part of a distance or endurance event.

Register a team 

Questions about one of our signature fundraising events? Contact Family Development Manager Jackie Piscatelli.

 

Rettsyndrome.org is the leading private funder of Rett syndrome research

Through partnerships with supporters like you, from the U.S. and from across the globe, we have invested more than $38 million in Rett syndrome research. With your help, we made the discoveries that allow us to test treatments for Rett syndrome in human clinical trials. Your support empowers us to look for immediate solutions for families touched by this rare disorder, from family support and development of treatments to rehabilitation and abilitation.