Events

Oct
7
Sat
New Jersey Strollathon
Oct 7 @ 9:00 am – 12:00 pm

Date: Sunday, October 7th, 2023
Time: 9:00 a.m. – 12 p.m. Eastern
Location: Thompson Park, Old Orchard Picnic Pavilion (805 Newman Springs Road, Lincroft, NJ 07738-1695)
Event Chairs: Leslie Greenfield & Allison Fitzgerald (Contact Email)

REGISTER & MORE INFORMATION

The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.

Maryland Strollathon
Oct 7 @ 10:00 am – 2:00 pm

Date: Saturday, October 7th, 2023
Time: 10:00 a.m.-1 p.m. ET
Location: Matthew Henson State Park (13421 Georgia Ave, Silver Spring, MD 20906); park at the Matthew Henson Trail Park & Parking Area located behind the Global Mission Church
Event Chairs: Toni Moore (Contact Email)

REGISTER & MORE INFORMATION

The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.

St. Louis Strollathon
Oct 7 @ 10:00 am – 1:00 pm

Date: Saturday, October 7th, 2023
Time: 10:00 a.m. CT
Location: JCC St. Louis (2 Millstone Campus Drive, St. Louis, MO 63146)
Event Chairs: Joyce Opinsky, Amy Kreher, & Amanda Sommer (Contact Email)

REGISTER & MORE INFORMATION

Make sure to follow the event on Facebook to stay up to date!

The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.

Oct
16
Mon
On the Ridge for Rett Golf Scramble
Oct 16 @ 10:00 am

Date: Monday, October 16, 2023
Time: Registration 8 a.m. | Shotgun Start 10:00 a.m.
Location: Falcon Ridge Golf Course (20200 Prairie Star Pkwy, Lenexa, KS 66220)
Event Chair: Sam Evans (email) & Haley Douglass (email)

REGISTER & MORE INFORMATION

Join the Douglass and Evans family for their inaugural On the Ridge for Rett Golf Scramble in honor Vivian who has Rett syndrome. Sponsorships, foursomes, and individual tickets are available now!

Oct
21
Sat
So Cal Strollathon
Oct 21 @ 12:00 pm – 4:00 pm

Date: Saturday, October 21st, 2023
Time: 12-4 p.m. PT
Location: Whittier High School (12417 Philadelphia St, Whittier, CA 90601)
Event Chair: Sherri Brady (Contact Email)

The So Cal Strollathon is back this Fall! Save the date to join us on Saturday, October 21st for our 21st annual stroll at Whittier High School.

REGISTER & MORE INFORMATION

Make sure to follow the event on Facebook to stay up to date!

The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.

Oct
22
Sun
Dallas Strollathon
Oct 22 @ 1:00 pm – 4:00 pm

Date: Sunday, October 22nd, 2023
Time: 1:00 p.m. – 4 p.m. Central
Location: Gussie Field Watterworth Park (2610 Valley View Ln, Farmers Branch, TX 75234)
Event Chairs: Vanessa Peace  (Contact Email)

REGISTER & MORE INFORMATION

The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.

Oct
28
Sat
4th Annual Raise a Glass for Rett Gala
Oct 28 @ 8:00 pm – 9:00 pm


Date:
Saturday, October 28, 2023
Time: 8-9 p.m. ET
Location: Virtual Livestream + In-Person Viewing Parties across the US

Join us for the 4th Annual Raise a Glass for Rett Gala, presented by Raising a Hand for Rett!

GET VIRTUAL TICKETS

Grab your commemorative beer or wine glass and join us for an evening of stories from your Rett community, inspiring updates on science and research advancements, and the opportunity to support Rett families all over the world. This special event will be streamed by thousands across the globe, either from one of our viewing parties or from the comfort of your home. Over the past two years, our donors, sponsors, and viewers have raised nearly $1M to empower families and accelerate research towards treatments and cures for Rett.

Locations:

For sponsorship opportunities or interest in hosting a viewing party in your city, please contact Tim Frank at [email protected].

Nov
4
Sat
Florida Strollathon
Nov 4 @ 9:30 am

Date: Saturday, November 4, 2023
Time: 9:30 a.m. ET
Location: West Melbourne’s Space Coast Field of Dreams (3053 Fell Road, West Melbourne,FL 32904)
Event Chair: Henry Perez (Contact Email)

REGISTER & MORE INFORMATION

Make sure to follow the event on Facebook to stay up to date!

The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.

Nor Cal Strollathon & 5K
Nov 4 @ 10:00 am – 2:00 pm

 

Date: Sunday, November 4th, 2023
Time: 10:00 a.m. – 2 p.m. Pacific
Location: Vasona Lake County Park (333 Blossom Hill Rd., Los Gatos, CA 95032)
Event Chairs:  Rachael Linford, Melissa Nues & Natalie Gifford (Contact Email)

REGISTER & MORE INFORMATION

The Strollathon is a nationwide IRSF fundraiser that brings together local communities to go ALL IN towards treatment and a cure for Rett syndrome. Since 2004, these family-friendly events powered by dedicated volunteers, sponsors, donors, and Rett families have raised more than $15M to advance IRSF’s mission to empower families and accelerate research toward a world without Rett.

Jun
19
Wed
ASCEND 2024 Rett Syndrome National Summit
Jun 19 – Jun 22 all-day

Designed to unite us as a community, this event will bring together parents, families, clinicians, researchers, and Rett organizations around the world. Come join us in the Mile High City as we ascend to greater heights at The Westin Westminster. This location offers sweeping views of the Rocky Mountains and is conveniently situated just 15 minutes from both Denver and Boulder.

Featuring a lineup of expert speakers, updates on Rett syndrome research, and opportunities to connect with your Rett community, ASCEND 2024 is not to be missed. Look out for information on early bird registration, discounted room rates, and more later in 2023!

Together we can overcome the challenges of Rett syndrome and reach the summit of hope and healing–a world without Rett syndrome.