Apr
22
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/Run-for-Rett.png)
Categories: Special Events - Run/Walk
Apr
24
Mon
**RESCHEDULED**
Date: Monday, April 24, 2023 Time: Registration 7:00 am ET; First flight tee off 8:30 am ET Location: Hillcrest Golf & Country Club (4011 N Boston Ave, Lubbock, TX 79415) Continental breakfast items available and lunch will be provided We invite you to take part in the First Annual Hannah’s Hope Golf Tournament rescheduled for April 24, 2023 at Hillcrest Country Club. This tournament will benefit the International Rett Syndrome Foundation in honor of Hannah Hooks. The inspiration behind our tournament is 10-year-old Hannah Hooks. Hannah lives in Lubbock and is in 5th grade at Lubbock-Cooper West Elementary. Hannah was born with a rare disease called Rett Syndrome. Rett syndrome is a rare genetic neurological disorder that leads to severe impairments, affecting nearly every aspect of the child’s life. In April of 2022 IRSF hosted their National Science and Family Summit and presented an update on a treatment for Rett Syndrome. Rett Syndrome has been treated in mice and there are multiple clinical trials going on throughout the world to bring a cure to the males and females living with Rett. A treatment for Rett will also lead to breakthroughs in many other diseases and disorders. In order to continue research, organizations like International Rett Syndrome Foundation need funds to contribute to the many companies who are seeking a treatment. INFORMATION & REGISTRATION Categories: Special Events - Golf Tournaments
May
8
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Charamella-Golf_Website.png)
![](https://www.rettsyndrome.org/wp-content/uploads/Charamella-Golf-Logo.jpeg)
Categories: homepage Special Events - Golf Tournaments
Jun
9
Fri
![](https://www.rettsyndrome.org/wp-content/uploads/Rip-it-for-Rett_Website-Event-1400-×-613-px.png)
Categories: homepage Special Events - Golf Tournaments
Jul
31
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Norcina-Header.png)
Categories: Special Events - Golf Tournaments
Sep
25
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Goals-for-Gracie-23_website-event.png)
Categories: homepage Special Events - Golf Tournaments
Oct
16
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/On-the-Ridge-for-Rett-calendar-image.png)
Categories: homepage Special Events - Golf Tournaments
May
13
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Golf-Event_FB-Cover.png)
![](https://www.rettsyndrome.org/wp-content/uploads/Charamella-Golf-Logo.jpeg)
Categories: homepage Special Events - Golf Tournaments
Jun
19
Wed
Jun 19 – Jun 22 all-day
![](https://www.rettsyndrome.org/wp-content/uploads/ASCEND24_Event-Header_1400x613.png)
Thank you to our sponsors:
Presenting Sponsor:![](https://www.rettsyndrome.org/wp-content/uploads/Acadia_Reg_rgb_primary_gradient.png)
![](https://www.rettsyndrome.org/wp-content/uploads/NeuroGene_Logo_®_Dark-Green-01_transparent-background.png)
![](https://www.rettsyndrome.org/wp-content/uploads/Taysha_Inline_Full-Color_RGB_300.png)
Bronze Sponsor (Family Conference):
Anovo
Oct
2
Wed
![](https://www.rettsyndrome.org/wp-content/uploads/Rett-World-Congress.png)
Categories: homepage Special Events - Meetings/Symposiums
Oct
14
Mon
Date: Monday, October 14, 2024 Time: TBD Location: Lenexa, KS Event Chair: Haley Douglass and Sam, Katie, & Parthy Evans More information coming soon!
Categories: homepage Special Events - Golf Tournaments
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