Events

May
11
Sat
MORE
RettEd: Adulthood: Living and Lifestyle options Saturday: Special Day/Time
May 11 all-day
Jun
22
Sat
MORE
Rettsyndrome.org Boston Ed Day
Jun 22 all-day

Rettsyndrome.org Ed Day hosted by TBD – Boston, MA

Jul
20
Sat
MORE
Rettsyndrome.org Bay Area Ed Day
Jul 20 all-day

Hosted by UCSF Benioff Children’s Hospitals Katie’s Clinic for Rett and Related Disorders, a Rettsyndrome.org Clinical Research Center of Excellence

Intended for anyone wanting to connect on issues important to Rett syndrome families, especially clinical trial information and emphasis on the enriched environment. Attendees will enjoy a fun camp-style day of discussion and “living education” activities that will cover: research updates, medical and therapeutic interventions, and communication strategies.

WHEN | Saturday, July 20, 2019

WHERE | Camp Arroyo, 5555 Arroyo Road, Livermore, CA 94550

TIME | 9:00a.m. – 4:00p.m. (please arrive at 8:30a.m.)

Fee: $10/per person. Diagnosed children are FREE.

Includes: Presentations, hands-on activities and demonstrations, interactive panel discussion, continental breakfast and lunch. We will have an onsite photographer for family portraits for RSO awareness and education materials. If you choose to participate, photos will be shared with you at no charge.

REGISTER NOW!

 

Sep
27
Fri
MORE
European Rett Syndrome Conference
Sep 27 all-day

The program will have lectures from international experts. Subjects include epilepsy, learning and communication, physiotherapy and other rehabilitation, nutrition, sleep and neurological problems.

The purpose of Rett Finland  is to support families with Rett’s syndrome diagnosed child. The Association has about 100 members. For more information on the association’s activities, visit the association’s website at www.rettfinland.fi and on Facebook www.facebook.com/Rett-Finland

Registration & Information

Sep
28
Sat
MORE
European Rett Syndrome Conference
Sep 28 all-day

The program will have lectures from international experts. Subjects include epilepsy, learning and communication, physiotherapy and other rehabilitation, nutrition, sleep and neurological problems.

The purpose of Rett Finland  is to support families with Rett’s syndrome diagnosed child. The Association has about 100 members. For more information on the association’s activities, visit the association’s website at www.rettfinland.fi and on Facebook www.facebook.com/Rett-Finland

Registration & Information

Oct
24
Thu
MORE
Rett Syndrome Ed Day: Communication and Literacy for Individuals with Complex Communication Needs
Oct 24 @ 9:00 am

WHEN | Thursday, October 24th, 2019
TIME | 9:00am
WHERE | Monmouth University: Directions | Website

Registration
Information

Communications Guidelines Pop-up