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EARLY BIRD PRICING IS OPEN! $125 PER PERSON!

We’re gearing up for the ASCEND 2022 Rett Syndrome National Summit in Nashville!
GAYLORD OPRYLAND RESORT & CONVENTION CENTER
April 27-30, 2022

Designed to unite us as a community, this event will bring together parents, families, clinicians, researchers, and Rett organizations around the world. Together we can overcome the challenges of Rett syndrome and reach the summit of hope and healing–a world without Rett syndrome.

Top Reasons to Attend ASCEND!

Incredible Sessions

Rett Experts

Family Connections

Elegant Accommodations

Get registered with Early Bird Pricing!


 

SPEAKERS

ASCEND welcomes Huda Zoghbi, MD and Chris Ulmer as keynote speakers!

Huda Zoghbi
Dr. Huda Zoghbi is a professor in the departments of Pediatrics, Molecular and Human Genetics, and Neurology and Neuroscience at Baylor College of Medicine, the director of the Jan and Dan Duncan Neurological Research Institute at Texas Children’s Hospital, and an investigator of the Howard Hughes Medical Institute. She has been a pioneer in Rett syndrome research for nearly 40 years, and Dr. Zoghbi’s lab was responsible for the game-changing discovering of the gene that causes Rett syndrome. She has received numerous awards for her work in unlocking the genetic and molecular mysteries behind several devastating neurological disorders, including Rett syndrome.

Chris Ulmer
Chris Ulmer is the founder of the leading neurodiversity movement, SBSK (Special Books by Special Kids), which has surpassed 7 million followers in over 130 countries across the globe, with its videos being viewed over 2 billion times. Chris travels the globe meeting friends with a diagnosis and sharing their stories on social media. He believes that when we take the time to hear someone’s story and view life from their perspective, we learn and grow as humans making the world a better place. Together Chris and the SBSK community are promoting conversations on acceptance and inclusion around the world.

Check out Chris’ YouTube Channel.

At ASCEND, you will have access to leading Rett researchers, IRSF Centers of Excellence directors, and many speakers to encourage and equip you on your journey.

Alan Percy, MD

Alan Percy, MD

                   

University of Alabama at Birmingham

Tim Benke, MD, PhD

Tim Benke, MD, PhD

                   

Children’s Hospital Colorado

Jeffrey Neul, MD, PhD

Jeffrey Neul, MD, PhD

                   

Vanderbilt University Medical Center

Tim Feyma, MD

Tim Feyma, MD

                   

Gillette Children’s Specialty Healthcare

Theresa Bartolotta, PhD, CCC-SLP

Theresa Bartolotta, PhD, CCC-SLP

                   

Monmouth University

Sasha Djukic, MD, PhD

Sasha Djukic, MD, PhD

                   

Montefiore Medical Center

Kathleen Motil, MD, PhD

Kathleen Motil, MD, PhD

                   

Baylor College of Medicine

Robin Ryther, MD, PhD

Robin Ryther, MD, PhD

                   

Washington University in St Louis and St. Louis Children’s Hospital Rett Spectrum Clinic

Rocco Gogliotti, PhD

Rocco Gogliotti, PhD

                   

Loyola University Chicago

Art Beisang, MD

Art Beisang, MD

                   

Gillette Children’s Specialty Healthcare

Karen Erickson, PhD

Karen Erickson, PhD

                   

UNC School of Medicine, Center for Literacy and Disability Studies

David Koppenhaver, PhD

David Koppenhaver, PhD

                   

Appalachian State University

Kyle Fink, PhD

Kyle Fink, PhD

                   

University of California, Davis Medical Center

Meir Lotan, PT, PhD

Meir Lotan, PT, PhD

                   

Ariel University

Bernard Suter, MD

Bernard Suter, MD

                   

Baylor College of Medicine

Keerthi Krishnan, PhD

Keerthi Krishnan, PhD

                   

The University of Tennessee, Knoxville

Aloysia Leisanne Schwabe, MD

Aloysia Leisanne Schwabe, MD

                   

Texas Children’s Hospital

Jane Lane, RN, BSN

Jane Lane, RN, BSN

                   

University of Alabama at Birmingham

Lisa Lightner

Lisa Lightner

                   

A Day in Our Shoes

Kacy Seitz, CLTC, ChSNC

Kacy Seitz, CLTC, ChSNC

                   

Financial Advisor & Special Needs Planning Specialist, Northwestern Mutual

Jessica Nickrand, PhD

Jessica Nickrand, PhD

                   

Child Neurology Foundation


 

AGENDA

ASCEND 2022 Rett Syndrome National Summit is Wednesday, April 27 through Saturday, April 30

Check-in Begins – Wednesday, 4/27, at 12 p.m.
Evening Mingling Reception – Wednesday, 4/27
Welcome & Kick-off – Thursday, 4/28 at 8 a.m.
Last Session Ends – Saturday, 4/30 at 11 a.m.

As a Rett community, it’s rare to connect in person with other Rett families. And if you don’t live near a Rett clinic, often, your access to specialized advice can be limited.

This Summit will close that gap.

We’re designing the Summit agenda so you’ll be able to spend time with Rett families, hear from Rett doctors and researchers, and learn about the latest technology and therapies that can help bring some ease into your daily life.

Stay tuned for more details!


 

REGISTRATION

Individual registration gets you access to our keynote speaker Chris Ulmer of Special Books for Special Kids, all the main sessions with Rett experts, special activities designed to connect our community, and our ASCEND event app filled with information, updates, and a place to connect with other families! Registration also includes breakfast and lunch!

ASCEND is designed for adult caregivers. Loved ones with Rett syndrome and children are welcome, but the Summit experience may not be well-suited for them. We hope to make Rett syndrome respite care available for an additional fee.

Act Now! Early Bird Pricing Ends September 30!

Event Waiver | Cancellation Policy | Covid-19 Policy


 

ACCOMMODATIONS

Gaylord Opryland Hotel & Convention Center
2800 Opryland Drive, Nashville

The Gaylord is just minutes from the Grand Ole Opry and a short drive from the heart of Nashville. Experience the cuisine, honky-tonks, history, fashion, and art that make Music City one of the fastest-growing cities in the U.S.

Space is limited, so book early to receive special IRSF pricing!

BOOK YOUR ROOM AT GAYLORD

Gaylord Opryland


 

SPONSORS & Exhibitors

If you’re interested in learning about sponsorship & exhibitor opportunities, contact Andrea Reed at [email protected].


CONTACT US WITH QUESTIONS

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