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During the last week of April 2022, the International Rett Syndrome Foundation welcomed more than 500 members of the Rett community to the ASCEND 2022 Rett Syndrome National Summit.

Over the course of two and a half days, 45 speakers presented more than 23 hours of thoughtful and educational programming on the topics most important to caregivers, parents, educators, therapists, researchers, and clinicians.

Read the Event Recap

Session Topics Included:
ABLE Accounts vs. Special Needs Trust • Seizures, Rett Episodes and Movement Disorders • Puberty & Womanhood • Avoiding Scoliosis • Addressing & Treating Pain • Communications in Rett • The Future of Clinical Trials • Understanding the Brain/Gut Connection • And More!

View the Full Agenda View the Speaker List

Access the ASCEND 2022 Resource Library featuring session videos, presentations, and more!

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Praise for ASCEND 2022!

We connected with so many wonderful families and had the opportunity to listen to some brilliant researchers and doctors speak. Savannah also had the opportunity to participate in a research study with Vanderbilt while there. Highlights of the trip include Savannah meeting her celebrity crush (Chris Ulmer), Savannah testing out an eye-gaze controlled wheelchair, making new friends and finally meeting existing friends in person, teaching other parents about the fun to be had with switch-operated toys and more!
Sarah Morrison
I couldn't be more proud to represent Acadia Pharmaceuticals at this critically important Rett Syndrome conference hosted by IRSF. I'm so privileged to have the opportunity to help create a world without Rett.
Damian May, Acadia Pharmaceuticals Inc.
There were so many amazing sessions! My favorites were the ones that provided practical information to resolve common issues for us. The best part was meeting families and attending the very informative sessions. It was our first time attending, and I’m looking forward to the next one.
Marisela Quintero, first-time attendee



Presenting Sponsor:

Taysha Gene Therapy

Platinum Sponsors:

Acadia Logo - Platinum Sponsor


Gold Sponsors:

IMC Logo


Silver Sponsors:

hive networks
Novartis Pharmaceuticals


Bronze Sponsors:


Tobii Dynavox Logo