Our Research Strategy

We are accelerating Rett syndrome research toward clinical testing to create life-changing treatments and a cure for those diagnosed with Rett syndrome. We have invested over $49 million in research to find new discoveries, to translate ideas into medicine, to move those medicines into clinical trials, and to create therapies to help individuals regain the skills and abilities stolen by Rett syndrome.

We are committed to creating solutions for today, while we work to create
a world without Rett syndrome tomorrow.

Funded Research Spectrum

Clinical Research Centers of Excellence

Rettsyndrome.org has created an innovative clinic program designation, the Rettsyndrome.org Clinical Research Centers of Excellence. In North America, we work with 22 Rett syndrome clinics that provide care and treatment to those with Rett syndrome and participate in our North American Rett syndrome Clinics Network. We also recognize the 14 clinics that have been involved with the Natural History Study for their long commitment to studying and improving the lives of those who suffer from Rett syndrome as a Rettsyndrome.org Clinical Research Center of Excellence.


Rettsyndrome.org Clinical Research Centers of Excellence
University of Alabama Birmingham Civitan International Research Center, Birmingham, AL
University of California San Diego, Rady Children’s Hospital, San Diego, CA
University of California San Francisco Benioff Children’s Hospital Oakland, Walnut Creek, CA
Children’s Hospital Colorado, Aurora, CO
Rush University Medical Center, Chicago, IL
Boston Children’s Hospital and Harvard Medical School, Boston, MA
Gillette Children’s Specialty Healthcare, Saint Paul, MN
Washington University School of Medicine Saint Louis Children’s Hospital, Saint Louis, MO
University of Rochester Medical Center, Rochester, NY
Cincinnati Children’s Hospital Medical Center, Cincinnati, OH
Children’s Hospital of Philadelphia, Philadelphia, PA
Greenwood Genetic Center, Greenwood, SC
Vanderbilt University School of Medicine and Vanderbilt Kennedy Center for Research on Human Development, Nashville, TN
Texas Children’s Hospital, The Blue Bird Circle Rett Center, Houston, TX