Sep
26
Sat
17th Annual Cincinnati Strollathon: Virtual Edition
Join us for the 17th Annual Cincinnati Strollathon- VIRTUALLY! At Rettsyndrome.org, the health and well-being of those in our community are of utmost importance. Due to the COVID-19 pandemic, we have decided to host this year's Stroll VIRTUALLY. We have some tricks up our sleeve to provide a fun and engaging virtual experience! Be sure to follow us on Facebook to stay up to date on our fun virtual activities: facebook.com/Cincinnati-Tri-State-Strollathon Date: September, 26th, 2020 Location: your neighborhood, walking trail or treadmill! Event Chairs: Brittney Gibson, Jim Magato, & Jennifer Magato Information & Registration Categories: Special Events - Strollathons
Oct
3
Sat
Rett Gets Rocked Ultramarathon
A weekend in which participants complete an ultra marathon of their choosing--from 50K to 100 miles, or from 6 to 48 hours. They can stretch their event over the month of October if desired. Proceeds from the event go to Rettsyndrome.org and the Rett Spectrum Clinic at St. Louis Children's Hospital! Register for RGRVUW by purchasing a race shirt! REGISTER Jay Murry will be doing his ultra-marathon in his local sub-division, the Vineyards. The Rett Gets Rocked headquarters will be located at: 756 Napa Lane, St. Charles MO 63304 on Sat 10/3 from 12pm- Sun 10/4 at 8pm. To donate to Jay, please click here. To follow along on Facebook, visit: https://www.facebook.com/24hourjaymurry/ For more information, contact Jay at [email protected] Categories: Special Events - Run/Walk
Oct
4
Sun
14th Annual Minnesota Virtual Strollathon
Join us for the 14th Annual Minnesota Virtual Strollathon!- Sunday October 4th, 2020
- Location: Virtual
- Event Chair: Mary Kallstrom ([email protected])
Categories: Special Events - Strollathons
Join us for the 12th Annual New Jersey Strollathon- VIRTUALLY!
At Rettsyndrome.org, the health and well-being of those in our community are of utmost importance. Due to the Covid-19 pandemic, we will be going Virtual this year! We have some tricks up our sleeve to make this a fun & engaging event. Date: Sunday, October 4th, 2020 Location: Your neighborhood, local walking trail or treadmill! Follow us on Facebook for contests, event updates and more! Event Chair: Leslie Greenfield ([email protected]) Information & Registration Categories: Special Events - Strollathons
Oct
13
Tue
Please join Rettsyndrome.org on Tuesday, October 13, 2020 at 1:00pm Eastern Time (New York) for status updates on clinical trial and research enrollment opportunities in the U.S. Rett syndrome is a complex disorder, and sharing accurate information is more than empowering, it can be life-altering for everyone. Join this webinar to learn how we all have a role to play in research progress. With this in mind, what’s on your mind? Register now and submit your questions and thoughts. Those submitted in advance will be addressed, and there will be plenty of time for write-in questions during the session. Information & Registration
Categories: Education Slider Webasts Webinar
Oct
17
Sat
13th Annual St. Louis Virtual Strollathon
Dates: Saturday, October 17, 2020 Location: Virtual Event Chairs: Joyce Opinsky & Amy Kreher ([email protected]) Information & Registration Categories: Special Events - Strollathons
7th Annual Raleigh Strollathon: Virtual Edition
Join us for the 7th Annual Raleigh Strollathon VIRTUALLY! Please join us on Saturday, October 17th at 11am EST on Facebook for our 'virtual' event. Be sure to wear your past or present Stroll apparel and share photos on our FB page. Follow our Facebook page for more info, contests and more! Facebook page: https://www.facebook.com/NCIRSFStrollRaleigh/ Questions? Contact: Gwen Noecker ([email protected]) or (919) 426-5554. Information & Registration Categories: Special Events - Strollathons
Oct
24
Sat
18th Annual SoCal Virtual Picnic & Strollathon
Join us for the 18th Annual SoCal Picnic & Strollathon - Virtual Edition!- Date: October, 24th, 2020
- Location: Virtual
- Event Contact: Sherri Brady (562-619-0109 or [email protected])
Categories: Special Events - Strollathons
1st Annual South Carolina Virtual Strollathon
Join us for the 1st Annual South Carolina Virtual Strollathon!- Saturday October 24th 2020
- Location: Virtual
- Event Chairs: Stephanie Gives Winckler and Danyell Flowers
Categories: Special Events - Strollathons
Raise a Glass Against Rett: Virtual Edition
Date:Saturday, October 24th Time: 8pm EST Be inspired by stories from our community, hear our research update, and learn how you can help create a world without Rett. Join Rettsyndrome.org and families for a Virtual Gala this fall. And raise a glass to overpowering Rett! Information & Registration Categories: Special Events - General
Oct
31
Sat
11th Annual Florida Strollathon: Virtual Edition
Join us for the 11th Annual Florida Strollathon- VIRTUALLY! At Rettsyndrome.org, the health and well-being of those in our community are of utmost importance. Due to the COVID-19 pandemic, we have decided to host this year's Stroll VIRTUALLY. We have some tricks up our sleeve to provide a fun and engaging virtual experience! Date: October, 31st, 2020 Location: your neighborhood, walking trial or treadmill! Event Contact: Jackie Ventura (978-500-2495 or [email protected]) Information & Registration Categories: Special Events - Strollathons
7th Annual Maine Strollathon: Virtual Edition
Join us for the 7th Annual Maine Strollathon- VIRTUALLY! At Rettsyndrome.org, the health and well-being of those in our community are of utmost importance. Due to the COVID-19 pandemic, we have decided to host this year's Stroll VIRTUALLY. We have some tricks up our sleeve to provide a fun and engaging virtual experience! Date: October 31, 2020 Location: your neighborhood, walking trial or treadmill! Stroll Chair: Evie Swan (775-200-8788 or [email protected]) Information & Registration Categories: Special Events - Strollathons
Nov
7
Sat
8th Annual San Antonio Virtual Strollathon
Join us for the 8th Annual San Antonio Virtual Strollathon!- Saturday November 7th, 2020
- Location: Virtual
- Event Chair: Ashley Cotham
Categories: Special Events - Strollathons
Dec
5
Sat
Hannah Grace Carpenter
Artist Reception Date: December 5 Time: 2:00-4:00pm Location: 148 North Main Street, Downtown Historic Mooresville Important Information Categories: Special Events - General
Dec
8
Tue
Join us Tuesday, December 8th, at 1:00 pm (EDT) to hear from Tristen Dinkel, RN about Cortical Visual Impairment (CVI) in Rett syndrome. Our loved ones with Rett syndrome often exhibit particular eye movements or gaze patterns. Is this a motor behavior or visual strategy? What do our children see? How do they process visual information? Register now, and submit your questions. Pre-submitted relevant questions will be addressed, and there will be time for write-in questions during the session. REGISTER Our RettEd Webcasts are Free, but registration is required. RettEd Webcasts are recorded. When you register, you will receive a link to the recording within 1-2 days after the presentation. Rettsyndrome.org is committed to standing with you today, to fighting to transform your tomorrow. Check out our other upcoming webcasts, as well as an incredible library of past webcasts on multiple Rett topics: www.rettsyndrome.org/education.
Categories: Education Slider Webasts Webinar
Feb
27
Sat
Test your trivia knowledge and support Rett syndrome!
Looking for something fun to do this winter while stuck inside and want to support Rettsyndrome.org at the same time? Get your thinking caps on, gather some friends (virtually) and join us for our winter Trivia Night Virtual Showdown fundraiser! Date: Saturday, February 27 Time: 7pm EST Price: $100 (for a group of 10) Details: Space is limited as we are capping out at 20 groups of 10. The ticket purchaser is the 'team captain' and will need to fill out a link after purchasing tickets with the team member names & email addresses. Please direct any questions to Jackie Ventura at [email protected] Information & Registration Categories: Special Events - General
Apr
30
Fri
We are excited to be able to host the event this Spring! We will be following the guidelines of the CDC and may have to implement social distancing and face coverings dependent upon the CDC guidelines in place at the end of April. Come out and break some clays with us as we raise money for a very special cause. 100% of all tournament proceeds go to RettSyndrome.org! Experienced and Novice shooters are welcome! Date: April 30, 2021 Details: $750 per 4-man team $200 per individual Mulligan Package: 6 Shots for $25 Carts included, ammunition not included Information & Registration
Categories: Special Events - General
May
6
Thu
May 6 @ 9:00 am
Rotary Club of Indialantic - Charity Golf Tournament
Charity Golf Tournament & virtual Gala in support of Rettsyndrome.org. 40% of all proceeds go to Rettsyndrome.org Date: Saturday, May 22, 2021 Course: Spessard Holland at Melbourne Beach Information & Registration Categories: Special Events - Golf Tournaments
May
8
Sat
Run for Rett
WE ARE GOING VIRTUAL AGAIN!!!
When: Saturday, May 8th - Sunday, May 16th Where: Any time and any place Our responsibility is to the health and well being of our participants and volunteers for the Run For Rett. The decision to change to a virtual event was thoughtfully made with extreme concern for our entire Rett syndrome community and our dedicated participants and volunteers. Thank you for your understanding, cooperation and support. How you participate is totally up to you. You can run the 5K, walk a mile or sit in your recliner. No matter what you choose you are a winner because you are making a difference in the lives of those impacted by Rett syndrome. We encourage you to register online. It’s easy to register at Raceroster.com/46429 Follow us on Facebook: Click here - Run Rett 2021 Categories: Special Events - Run/Walk
May
10
Mon
Mark was a devoted husband, father and friend that touched many lives through his enthusiasm and love of life. Every job, school, team or organization that he was involved with became a part of him. He had a great ability to connect with people and shared his passion for life with everyone that he met. As a father of a daughter with Rett syndrome, Mark did everything he could to make her life better. It is in his honor that we gather his family and friends to celebrate a life well lead and to give to a cause that was close to Mark’s heart. To learn more, you may view the brochure here. Join us on Monday, May 10th, 2021 Due to the Covid-19 pandemic, we will be following the CDC guidelines inclusive of masks & social distancing. 11 – 12pm: Golf registration & Lunch 12:30pm: Shotgun Start 5pm: Tailgate, food truck
SIGN UP AS A FOURSOME OR INDIVIDUAL
Registration/Dinner All sponsors will need to provide company logo/artwork via email to Deb McLaughlin [email protected]. All payments & artwork must be received by May 3rd. Sponsorship If you can’t attend the event you can still make a general donation. Donate Categories: Special Events - Golf Tournaments
Jun
5
Sat
The 2nd Annual Summer Virtual 5K is Back!
Date: June 5, 2021 Join our community around the world by lacing up your shoes and hitting your local neighborhood, trail (social distancing required), or treadmill. Run, walk, skip, or stroll to end Rett syndrome! No registration fee; however, fundraising is encouraged. Once $200 has been raised, we will send you a Rett Racer t-shirt. Share your photos on race day to our Facebook event or your personal fundraising page! Use the hashtag #rettracers. Information & Registration Categories: Special Events - Run/Walk
Jul
13
Tue
You Can't Miss the Final Samantha Corpus Golf Tournament Samantha's Farewell 15 July 13, 2021 Please join us for the legendary Samantha Corpus Golf Tournament, On Tuesday July 13th at The Blackhawk Country Club, as we will be hosting our 15th and Final Tournament. Due to the Pandemic we had to postpone the tournament last year. In spite of all the uncertainty the outpouring of love and support continued and many of you asked and hoped that we would be able to conclude this epic event in grand style. Information & Registration
Categories: Special Events - Golf Tournaments
Jul
25
Sun
Scramble for a Cure
Date: July 25th, 2021 Details: 18 hole scramble at The Chief Golf Course 7:30am coffee & muffins 8:30am shotgun start Lunch provided by The Pelican's Nest Proceeds go to IRSF Information & Registration Categories: Special Events - Golf Tournaments
Aug
20
Fri
Rip it for Rett
The Rip it for Rett, hockey themed golf tournament is a blast, a great round of golf on a great course with really awesome people. What more can you ask for? Find out the details on how to get in on the fun! Join this sibling group as they raise money for IRSF in honor of their sister! Sponsorships and foursomes are still available. Information Registration & Sponsorships Categories: Special Events - Golf Tournaments
Sep
1
Wed
Join us virtually this Fall as you Stroll in your neighborhood or host a picnic to help overpower Rett. We will host a live event via Zoom on Saturday, October 23rd, 2021 at 12 noon PST. Please check back soon for more details. Fundraising pages now open to create teams & personal pages for the virtual Strollathon. Register Donate Sponsor
Sep
12
Sun
Rev It for Rett Syndrome
In Honor of Maylee Stump
Date: Saturday, September 12th Time: 1pm-8pm Location: Legacy 925 925 North Lapeer Td. Oxford, MI Details: Car show, 925 Social Bar & Food Trucks, Urban Air, K1 Speed, Silent Auction Contact: Cole Landau ([email protected]) More Information Categories: Special Events - General
Sep
19
Sun
Join us for the 10th Annual Nebraska Strollathon!
Important Update: Due to the Covid-19 pandemic, we have decided to host the event virtually this year! We care about the health of you and your family and hope to be able to gather back in person in 2022.
You can participate virtually in the following ways:
- Create your fundraising page & teams to help us reach our goal.
- Purchase a Strollathon t-shirt; shopping link coming soon!
- Stroll in your own community on Sunday 9/19- be creative! Decorate wheelchairs, cars, etc!
- Participate in our online auction; coming early September.
- Join our Zoom call on Sunday 9/19 at 10am CST: link coming soon.
Categories: Special Events - Strollathons
Sep
25
Sat
Join us for the 18th Annual Cincinnati Strollathon; VIRTUAL EDITION! We have made the difficult decision to host this year's event VIRTUALLY. We miss you all and can't wait to gather in person again. In the meantime, help us have a great virtual event by participating in a way that works for you!
- Fundraising pages are now open to create teams and help us overpower Rett.
- On Saturday, Sept 25th, plan to Stroll your way. Stroll your local neighborhood; decorate your car and drive around town to spread awareness!
- Consider asking your school or employer to have a special day to wear purple and collect donations!
- Event Chairs: Jen & Jim Magato ([email protected]) and Brittney Gibson ([email protected])
- Follow us on Facebook for continued updates & more fun!
Oct
3
Sun
We have made the difficult decision to make this year's event VIRTUAL. We miss you and can't wait to be together again. In the meantime, help us have a great virtual event to help overpower Rett!
- Fundraising pages now open to create teams & personal pages for the Strollathon.
- On Sunday, 10/3, plan to Stroll in your own communities. Get creative; decorate your car, wheelchairs, bikes, etc to help raise awareness for Rett!
- We will be hosting an online auction opening in late September; check back soon.
Categories: Special Events - Strollathons
Oct
9
Sat
2nd Annual Run for Rett 5k
Date: Saturday, October 9th, 2021 Location: Bradenton, FL We are very excited to have the Second Annual Run for Rett 5K to help spread awareness about Rett Syndrome. This year plans to be quite exciting with donations going to International Rett Syndrome Foundation as well the We Carry Kevan crew here to help any families who would like to join in the area with a child afflicted with Rett Syndrome. There will be food, prizes, and much more! Registration Make a Donation You can also check out our Facebook event for more information: https://www.facebook.com/events/261650685291726 Please direct any questions to event chair, Artie Phillips at [email protected] Categories: Special Events - Run/Walk
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