Events

Siblings Unique Concerns, Unique Opportunities

Dec 11 @ 1:00 pm – 2:30 pm

Topic: Siblings Unique Concerns, Unique Opportunities Speaker: Emily Holl, Director, Sibling Support Project Click to View Video

Categories: Previous Webinars

Jan

Newer Parents: Recommendations for a Healthier Start to Your Unexpected Journey

Jan 8 @ 1:00 pm – 2:30 pm

Topic: Newer Parents: Recommendations for a Healthier Start to Your Unexpected Journey Speaker: Tristen Dinkel, RN, DCH, Paige Nues, Sam Brant Click to View Recording

Categories: Education Slider Webinar

Feb

Rett Syndrome Research Outlook: 2019 & Beyond

Feb 12 @ 1:00 pm – 2:30 pm

Topic: Rett Syndrome Research Outlook: 2019 & Beyond Speaker: Steve Kaminsky, PhD Click to View Recording

Categories: Education Slider Webinar

Mar

A Good Night’s Sleep To All

Mar 12 @ 1:00 pm – 2:30 pm

Topic: A Good Night’s Sleep To All Speaker: Dr. Daniel Glaze, TCH, BCM Click to View Recording

Categories: Education Slider Webinar

Paint for a Cure @ De'borah's Jazz Cafe

Apr 6 @ 5:00 pm – 9:00 pm

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Categories: Special Events - General

Mon

IEP Strategies for Successful Inclusion

Apr 8 @ 1:00 pm – 2:30 pm

Topic: IEP Strategies for Successful Inclusion Speaker: Mickie McCool and Katie Busch Click to View Recording

Categories: Education Slider Webinar

Fri

Rett Spectrum 2nd Annual Family Education Symposium

Apr 12 all-day

Categories: Ed Day Education Slider

Emily’s Dri Tri and Spring Festival @ OTF Smyrna

Apr 13 @ 1:30 pm – 3:30 pm

Categories: Special Events - Run/Walk

Fighting for Finley

Apr 13 @ 5:00 pm – 9:00 pm

All-You-Can-Eat Buffest & Open Bar and Silent Auction

Categories: Special Events - General

Golf Fore A Cure @ Cleveland Heights Golf Course

Apr 20 @ 7:00 am – 4:00 pm

Categories: Special Events - Golf Tournaments

Midwest Rett Syndrome Foundation Education Day

Apr 27 all-day

Hosted with Gillette Children’s Specialty Healthcare Rett Syndrome Services Clinic - St. Paul, MN (Regional Association Partner)

Categories: Ed Day Education Slider

Run for Rett @ Busse Woods, Grove #28 Elk Grove, Illinois, (Forest Preserve District of Cook County)

Apr 27 @ 8:00 am – 11:00 am

Categories: Special Events - Run/Walk

St. Louis Strollathon @ JCC,2

May 4 @ 9:00 am – 10:00 am

Registration: 9:00am, Stroll: 10:00am Event Chairs: Joyce Opinsky & Amy Kreher

Categories: Special Events - Strollathons

3rd Annual Iowa Strollathon @ Kinzler Construction

May 4 @ 11:00 am – 2:00 pm

Co-Chairs: Kelly Zwald, Megan Hill Mitchum, Libby Stromer

Categories: Special Events - Strollathons

Sun

Live Rett Free @ E A Powell Elementary School

May 5 all-day

5K Run, 1 Mile Fun Run & 1 Mile Walk or Stroll

To Benefit Rettsyndrome.org

For more information, please email Live Rett Free. You may also call Amanda at (419) 306-4234 or Karen at (419) 957-3875. Download the Offline Registration Form to register, sponsor or make a donation by check.

Categories: Special Events - Run/Walk

Michigan Strollathon @ Drake Sport Park

May 5 @ 10:00 am – 11:00 am

Registration: 10:00am, Stroll: 11:00am

Categories: Special Events - Strollathons

RettEd: Adulthood: Living and Lifestyle options Saturday: Special Day/Time

May 11 all-day

Categories: Special Events - Meetings/Symposiums

Adulthood: Living and Lifestyle Options

May 11 @ 1:00 pm – 2:30 pm

Speakers: Jenny Downs, PhD, Michelle Stahlhut, PT, PhD, Theresa Bartolotta, PhD, Donna Witzleben Special Day/Time : Saturday, 11:00 AM EST Register

Categories: Education Slider Webinar

Mon

10th Annual Ella Foard Foundation For Rett Syndrome Charity Golf Classic @ Providence Country Club

May 13 all-day

10th Annual Ella Foard Foundation For Rett Syndrome Charity Golf Classic

Categories: Special Events - Golf Tournaments

Fri

The Great Rett Shootout @ Blackwood Gun Club

May 17 all-day

Categories: Special Events - General

Philadelphia Ed Day

May 18 all-day

Categories: Ed Day Education Slider

Sesame Place Dinner & Park @ Sesame Place

May 18 – May 19 all-day

Enjoy an accessible family friendly park for 2 days with a private dinner on Saturday. Tickets are $50/person; this is at least a $70 savings! Plan your Accessible Seasame Place Day!

Dinner:

Date: Saturday, May 18 Time: 6:00 - 7:00 pm Where: Abby's Garden Grille After 5:30 pm parking is free Tickets must be pre-purchased by Wednesday, May 8th 2019 and are non-refundable. Tickets include: Private after-hours dinner with a Sesame character appearance, and 2-day park passes to be used on Saturday, May 18th and Sunday, May 19th. The park is less than a mile away from the Rett Ed Day at Sheraton Bucks County. Parking at Sesame Place is $27 or $23 based on the lot. The Sheraton offers free parking and free non-ADA shuttle. For more information contact Paige Nues [email protected] or with questions to Erin Cassano (local Rett parent) [email protected]

Categories: Special Events - Non-Fundraising Events

14th Annual Samantha Corpus Golf Tournament @ Blackhawk Country Club

May 21 all-day

Other event contact: John Corpus - [email protected]

Categories: Special Events - Golf Tournaments

Jun

Maryland Strollathon @ Cecil Park Community Center

Jun 1 @ 11:00 am – 12:00 pm

Categories: Special Events - Strollathons

Jun

7th Annual Charamella Golf Tournament @ Westover Country Club

Jun 4 @ 11:00 am – 5:00 pm

Mark was a devoted husband, father and friend that touched many lives through his enthusiasm and love of life. Every job, school, team or organization that he was involved with became a part of him. He had a great ability to connect with people and shared his passion for life with everyone that he met. As a father of a daughter with Rett syndrome, Mark did everything he could to make her life better. It is in his honor that we gather his family and friends to celebrate a life well lead and to give to a cause that was close to Mark’s heart. 11:00 AM - 12:00PM Golf Registration & Lunch 12:30 PM Shotgun Start 5:00 PM Doors Open for Dinner * Lunch, 18 Holes of Golf, Driving Range, Tournament T-shirt, Dinner, Prizes, Raffle Table, Silent Auction

Sign up as a foursome or individual

PLAY GOLF All sponsors will need to provide company logo/artwork via email to Deb McLaughlin [email protected]. All payments and artwork due April 19, 2019. DINNER & SPONSORSHIP

If you can't attend the event you can still make a general donation. DONATE

Categories: Special Events - Golf Tournaments

Jun

Nutrition Strategies for Rett Syndrome