7th Annual Charamella Golf Tournament - Dinner and Sponsorship

Upcoming Events

1:00 pm RettEd: Rett Syndrome Communicat...

Mar 9 @ 1:00 pm

Communication is one of Rett syndrome’s biggest challenges. As such, individuals with Rett struggle to connect, build relationships, and make their wishes known. This critical RettEd webcast can help, no matter where a person is … Read More

Apr

Tue

1:00 pm RettEd: Let’s Hear It For The Bo...

RettEd: Let’s Hear It For The Bo...

Apr 13 @ 1:00 pm

We’ve learned a lot since the ‘80s—and it’s time to set the record straight! Dr. Bernard Suter of Texas Children’s Hospital will share what we know about males with Rett, males with MECP2 duplication, and … Read More

Apr

Fri

1:00 pm RettEd: What Hurts? Part 2: Addr...

RettEd: What Hurts? Part 2: Addr...

Apr 23 @ 1:00 pm

How do parents and caregivers recognize and treat pain in a loved one with Rett, especially if communication is a challenge? This RettEd can help! Dr. Tim Feyma and Dr. Art Beisang of Gillette Children’s, … Read More

Apr

Fri

all-day The Great Rett Shootout

The Great Rett Shootout

Apr 30 all-day

We are excited to be able to host the event this Spring! We will be following the guidelines of the CDC and may have to implement social distancing and face coverings dependent upon the CDC … Read More

Jul

Tue

8:00 am Samantha Corpus Golf Tournament

Samantha Corpus Golf Tournament

Jul 13 @ 8:00 am

You Can’t Miss the Final Samantha Corpus Golf Tournament Samantha’s Farewell 15 July 13, 2021 Please join us for the legendary Samantha Corpus Golf Tournament, On Tuesday July 13th at The Blackhawk Country Club, as … Read More