7th Annual Charamella Golf Tournament - Dinner and Sponsorship

Upcoming Events

4:00 pm Rett Syndrome Awareness Basketba...

Jan 25 @ 4:00 pm

Rett Syndrome Awareness Basketball Game: Quinnipiac vs Fairfield Date: Saturday, January 25th, 2020 Time: 4:00pm The People’s United Center at Quinnipiac, 305 Sherman Ave, Hamden, CT 06518 MAAC Tournament Kick Off, Rett Syndrome Awareness, Camper … Read More

Feb

Tue

1:00 pm RettEd: Gene Therapy CRISPR/Cas9...

RettEd: Gene Therapy CRISPR/Cas9...

Feb 11 @ 1:00 pm

Dr. Kyle Fink and Dr. Dominique Pichard explore the use of CRISPR/Cas9 technologies for gene therapy in Rett syndrome research. This live webcast will be especially helpful to caregivers trying to understand the current state … Read More

Mar

Sun

6:00 am Napa Valley 1/2 & Full Marathon

Napa Valley 1/2 & Full Marathon

Mar 1 @ 6:00 am

Join us for the Napa Valley Half & Full Marathon! Ever wanted to run through wine country? Well here is your chance! Rettsyndrome.org has been granted ten charity bibs for the 2020 Napa Valley Half … Read More

Mar

Tue

1:00 pm RettEd: Walking and Rett Syndrom...

RettEd: Walking and Rett Syndrom...

Mar 10 @ 1:00 pm

Dr. Meir Lotan is studying the effectiveness of home-based programs to enhance the functional abilities of girls with Rett syndrome. Dr. Lotan is an internationally renowned Rett syndrome physical therapist, author, and clinical researcher from … Read More

Mar

Sat

5:00 pm Cammy Can’s Cinderella Story

Cammy Can’s Cinderella Story

Mar 21 @ 5:00 pm – 10:00 pm

Help us celebrate Cammy’s 11th birthday by attending and raising a ton of money to find a cure so she can drink with you in Sidebar on her 21st birthday! WHEN | March 21, 2020 … Read More