Events

May
11
Sat
RettEd: Adulthood: Living and Lifestyle options Saturday: Special Day/Time
May 11 all-day
May
13
Mon
10th Annual Ella Foard Foundation For Rett Syndrome Charity Golf Classic
May 13 all-day

10th Annual Ella Foard Foundation For Rett Syndrome
Charity Golf Classic

May
21
Tue
14th Annual Samantha Corpus Golf Tournament
May 21 all-day

Other event contact: John Corpus – jdcorpus5@gmail.com

Jun
4
Tue
7th Annual Charamella Golf Tournament
Jun 4 @ 11:00 am – 5:00 pm

Mark was a devoted husband, father and friend that touched many lives through his enthusiasm and love of life. Every job, school, team or organization that he was involved with became a part of him. He had a great ability to connect with people and shared his passion for life with everyone that he met. As a father of a daughter with Rett syndrome, Mark did everything he could to make her life better. It is in his honor that we gather his family and friends to celebrate a life well lead and to give to a cause that was close to Mark’s heart.

11:00 AM – 12:00PM Golf Registration & Lunch
12:30 PM Shotgun Start
5:00 PM Doors Open for Dinner

* Lunch, 18 Holes of Golf, Driving Range, Tournament T-shirt, Dinner, Prizes, Raffle Table, Silent Auction

Sign up as a foursome or individual

PLAY GOLF

All sponsors will need to provide company logo/artwork via email to Deb McLaughlin markgolfrett@gmail.com.
All payments and artwork due April 19, 2019.

DINNER & SPONSORSHIP

If you can’t attend the event you can still make a general donation.

DONATE

Jun
22
Sat
Rettsyndrome.org Boston Ed Day
Jun 22 all-day

Rettsyndrome.org Ed Day hosted by TBD – Boston, MA

Jun
28
Fri
Rip it for Rett
Jun 28 @ 7:00 am – 4:00 pm

Join us for a great time supporting a great cause, we hope to see you on June 28, 2019!
The Rip it for Rett, hockey themed golf tournament is a blast, a great round of golf on a great course with really awesome people.

Jul
20
Sat
Rettsyndrome.org Bay Area Ed Day
Jul 20 all-day

Hosted by UCSF Benioff Children’s Hospitals Katie’s Clinic for Rett and Related Disorders, a Rettsyndrome.org Clinical Research Center of Excellence

Intended for anyone wanting to connect on issues important to Rett syndrome families, especially clinical trial information and emphasis on the enriched environment. Attendees will enjoy a fun camp-style day of discussion and “living education” activities that will cover: research updates, medical and therapeutic interventions, and communication strategies.

WHEN | Saturday, July 20, 2019

WHERE | Camp Arroyo, 5555 Arroyo Road, Livermore, CA 94550

TIME | 9:00a.m. – 4:00p.m. (please arrive at 8:30a.m.)

Fee: $10/per person. Diagnosed children are FREE.

Includes: Presentations, hands-on activities and demonstrations, interactive panel discussion, continental breakfast and lunch. We will have an onsite photographer for family portraits for RSO awareness and education materials. If you choose to participate, photos will be shared with you at no charge.

REGISTER NOW!

 

Sep
27
Fri
European Rett Syndrome Conference
Sep 27 all-day

The program will have lectures from international experts. Subjects include epilepsy, learning and communication, physiotherapy and other rehabilitation, nutrition, sleep and neurological problems.

The purpose of Rett Finland  is to support families with Rett’s syndrome diagnosed child. The Association has about 100 members. For more information on the association’s activities, visit the association’s website at www.rettfinland.fi and on Facebook www.facebook.com/Rett-Finland

Registration & Information

Sep
28
Sat
European Rett Syndrome Conference
Sep 28 all-day

The program will have lectures from international experts. Subjects include epilepsy, learning and communication, physiotherapy and other rehabilitation, nutrition, sleep and neurological problems.

The purpose of Rett Finland  is to support families with Rett’s syndrome diagnosed child. The Association has about 100 members. For more information on the association’s activities, visit the association’s website at www.rettfinland.fi and on Facebook www.facebook.com/Rett-Finland

Registration & Information

Oct
24
Thu
Rett Syndrome Ed Day: Communication and Literacy for Individuals with Complex Communication Needs
Oct 24 @ 9:00 am

WHEN | Thursday, October 24th, 2019
TIME | 9:00am
WHERE | Monmouth University: Directions | Website

Registration
Information

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