Jan
8
Tue
Jan 8 @ 1:00 pm – 2:30 pm
![](https://www.rettsyndrome.org/wp-content/uploads/DinkelTristen-2015_circlCrop.png)
Categories: Education Slider Webinar
Feb
12
Tue
![](https://www.rettsyndrome.org/wp-content/uploads/Steve_Kaminsky.png)
Categories: Education Slider Webinar
Mar
12
Tue
![](https://www.rettsyndrome.org/wp-content/uploads/Glaze-2018-photo_circlecrop.png)
Categories: Education Slider Webinar
Apr
8
Mon
![](https://www.rettsyndrome.org/wp-content/uploads/Mickie-and-Ellie-McCool.jpg)
Categories: Education Slider Webinar
Apr
12
Fri
Categories: Ed Day Education Slider
Apr
20
Sat
![](https://www.rettsyndrome.org/wp-content/uploads/2019-Flyer_ArrMaz.jpg)
![This image requires alt text, but the alt text is currently blank. Either add alt text or mark the image as decorative.](https://www.rettsyndrome.org/wp-content/plugins/wp-accessibility/imgs/alt-missing.png)
Categories: Special Events - Golf Tournaments
Apr
27
Sat
Hosted with Gillette Children’s Specialty Healthcare Rett Syndrome Services Clinic - St. Paul, MN (Regional Association Partner)
Categories: Ed Day Education Slider
May
4
Sat
Registration: 9:00am, Stroll: 10:00am Event Chairs: Joyce Opinsky & Amy Kreher
Categories: Special Events - Strollathons
Co-Chairs: Kelly Zwald, Megan Hill Mitchum, Libby Stromer
Categories: Special Events - Strollathons
May
5
Sun
Registration: 10:00am, Stroll: 11:00am
Categories: Special Events - Strollathons
May
11
Sat
Categories: Special Events - Meetings/Symposiums
![](https://www.rettsyndrome.org/wp-content/uploads/may-2019-retted_updated.jpg)
Categories: Education Slider Webinar
May
13
Mon
May 13 all-day
10th Annual Ella Foard Foundation For Rett Syndrome Charity Golf Classic
Categories: Special Events - Golf Tournaments
May
18
Sat
Categories: Ed Day Education Slider
![Sesame Place Dinner & Park @ Sesame Place](https://www.rettsyndrome.org/wp-content/uploads/Screen-Shot-2019-04-27-at-8.17.48-PM.png)
Enjoy an accessible family friendly park for 2 days with a private dinner on Saturday. Tickets are $50/person; this is at least a $70 savings! Plan your Accessible Seasame Place Day!
Dinner:
Date: Saturday, May 18 Time: 6:00 - 7:00 pm Where: Abby's Garden Grille After 5:30 pm parking is free Tickets must be pre-purchased by Wednesday, May 8th 2019 and are non-refundable. Tickets include: Private after-hours dinner with a Sesame character appearance, and 2-day park passes to be used on Saturday, May 18th and Sunday, May 19th. The park is less than a mile away from the Rett Ed Day at Sheraton Bucks County. Parking at Sesame Place is $27 or $23 based on the lot. The Sheraton offers free parking and free non-ADA shuttle. For more information contact Paige Nues [email protected] or with questions to Erin Cassano (local Rett parent) [email protected] Categories: Special Events - Non-Fundraising Events
May
21
Tue
Other event contact: John Corpus - [email protected]
Categories: Special Events - Golf Tournaments
Jun
1
Sat
Categories: Special Events - Strollathons
Jun
4
Tue
Mark was a devoted husband, father and friend that touched many lives through his enthusiasm and love of life. Every job, school, team or organization that he was involved with became a part of him. He had a great ability to connect with people and shared his passion for life with everyone that he met. As a father of a daughter with Rett syndrome, Mark did everything he could to make her life better. It is in his honor that we gather his family and friends to celebrate a life well lead and to give to a cause that was close to Mark’s heart. 11:00 AM - 12:00PM Golf Registration & Lunch 12:30 PM Shotgun Start 5:00 PM Doors Open for Dinner * Lunch, 18 Holes of Golf, Driving Range, Tournament T-shirt, Dinner, Prizes, Raffle Table, Silent Auction
Sign up as a foursome or individual
PLAY GOLF All sponsors will need to provide company logo/artwork via email to Deb McLaughlin [email protected]. All payments and artwork due April 19, 2019. DINNER & SPONSORSHIP If you can't attend the event you can still make a general donation. DONATE Categories: Special Events - Golf Tournaments
Jun
11
Tue
![](https://www.rettsyndrome.org/wp-content/uploads/suzi3_170crop.png)
Categories: Previous Webinars Webinar
Jun
22
Sat
Rettsyndrome.org Ed Day hosted by TBD – Boston, MA
Jun
28
Fri
Join us for a great time supporting a great cause, we hope to see you on June 28, 2019! The Rip it for Rett, hockey themed golf tournament is a blast, a great round of golf on a great course with really awesome people.
Categories: Special Events - Golf Tournaments
Jul
9
Tue
![](https://www.rettsyndrome.org/wp-content/uploads/Skinner-and-Warren.png)
Categories: Education Slider Webinar
Jul
20
Sat
Hosted by UCSF Benioff Children’s Hospitals Katie’s Clinic for Rett and Related Disorders, a Rettsyndrome.org Clinical Research Center of Excellence
Intended for anyone wanting to connect on issues important to Rett syndrome families, especially clinical trial information and emphasis on the enriched environment. Attendees will enjoy a fun camp-style day of discussion and “living education” activities that will cover: research updates, medical and therapeutic interventions, and communication strategies.WHEN | Saturday, July 20, 2019
WHERE | Camp Arroyo, 5555 Arroyo Road, Livermore, CA 94550
TIME | 9:00a.m. - 4:00p.m. (please arrive at 8:30a.m.)
Fee: $10/per person. Diagnosed children are FREE.
Includes: Presentations, hands-on activities and demonstrations, interactive panel discussion, continental breakfast and lunch. We will have an onsite photographer for family portraits for RSO awareness and education materials. If you choose to participate, photos will be shared with you at no charge. REGISTER NOW!Aug
27
Tue
![](https://www.rettsyndrome.org/wp-content/uploads/Sarika-and-Marie.jpg)
Categories: Education Slider Webasts
Aug
31
Sat
6th Annual Pennsylvania Strollathon
Join us for the 6th Annual Pennsylvania Strollathon Saturday August 31st, 2019 Registration: 9:00am, Stroll: 10:15am Location: Millvale Riverfront Park, Millvale PA? Directions :: Website Event Chair: Christina Dean ([email protected]) & Jennifer Langzettel ([email protected]) Registration & Information
Categories: Special Events - Strollathons
Sep
7
Sat
13th Annual Chicago Strollathon
Join us for the 13th Annual Chicago Strollathon! Saturday September 7th, 2019 When: 11:00am Location: Kankanee State Park Map ll Directions Event Chair: Misty Gruenes ([email protected]) Visit the Event page
Categories: Special Events - Strollathons
8th Annual Nebraska Strollathon
Join us for the 8th Annual Nebraska Strollathon Saturday, September 7th 2019 Registration: 1:00pm, Stroll: 2:00pm Location: Yanney Park, 2020 W 11th St, Kearney, NE 68845 Rotary Shelter by the Splash pad Event Chairs: Jacy Horst & Megan Ladenburger & Elly Gullion Registration & Information
Categories: Special Events - Strollathons
Sep
10
Tue
Sep 10 @ 1:00 pm
![](https://www.rettsyndrome.org/wp-content/uploads/huda-zoghbi-2017.jpg)
Categories: Education Slider Webinar
Sep
22
Sun
14th Annual Portland Strollathon
Join us for the 14th Annual Portland Strollathon Sunday, September 22nd Registration: 1:00pm, Stroll: 2:30pm Location: Rose Quarter, Portland OR Directions :: Website Event Chair: Lacey & Leigh Calvert Registration & Information
Categories: Special Events - Strollathons
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