COVID-19 Resources and Activities

Upcoming Trainings / Past Live Recordings / Enrichment Activities / Communication Resources / Recommended Webcasts / Alliance Resources

In the wake of this global health crisis, we want to empower you with resources to help your family during this time. You may be feeling isolated and stretched without your support team, but we believe that you are strong enough to make it through this. Making adjustments for the home may be just what you need.

Rettsyndrome.org has mobilized our global network of Rett experts, researchers, and partners to develop specific resources for you to use at home. We hope these resources will help keep your child, yourself, and your family on track.
.

12.11.20 COVID-19 Community update

Upcoming Home Bound Trainings

RettEd: How Your Child’s Data is Shaping the Future of Rett Research

Tuesday, January 19, 2021

Date: Tuesday, January 19 Time: 1-2:30pm (EST) For the last 16 years, the NIH-funded Natural History Study for Rett Syndrome...

Learn More

At-Home Training Session Recordings

Current State of Rett Syndrome Research

Dr. Dominique Pichard provides an update on the current state of Rett research, clinical trials, and answers your questions. Aired 6/9/20

WATCH NOW

At-Home Aqua Therapy

Briana Czerwinski, PT, shares ideas for modified aqua therapy that you can do at home in your pool, hot tub, jacuzzi or bathtub. Air Date: 5/26/20

WATCH NOW

Communication Intervention Strategies, Part 3

Gill Townend, PhD and Theresa Bartolotta, PhD share additional strategies to help those with Rett syndrome. Aired 5/11/20

WATCH NOW

Communication Intervention Strategies, Part 2

Gill Townend, PhD and Theresa Bartolotta, PhD introduce intervention strategies to help those with Rett syndrome at any age. Aired 5/4/20

WATCH NOW

Moves & Stretches Use Your Child’s Tract System

Dr. Lotan focuses on ways to use your loved one’s wheelchair or home track system for moves and stretches. Aired 4/30/20

WATCH NOW

Communication Intervention Strategies, Part 1

Gill Townend, PhD and Theresa Bartolotta, PhD introduce intervention strategies to help those with Rett syndrome at any age. Aired 4/27/20

WATCH NOW

Moves & Stretches for Adults with Rett

Dr. Lotan works with 2 families to demonstrate stretching and movement techniques with their adult children with Rett syndrome. Aired Live 4/16/20

WATCH NOW

Moves & Stretches for Tweens and Caregivers

Dr. Meir Lotan works with 4 U.S. families to demonstrate how they can use items around their house to keep their loved ones active and moving. Aired Live 4/9/20

WATCH NOW

Movement Techniques for Caregiver & Child

Dr. Meir Lotan demonstrates movement techniques and what families can do with their child at home to keep them physically active. Aired Live 4/2/20

WATCH NOW

Communication Engagement Strategies

Dr. Gill Townend and Dr. Theresa Bartolotta share ways to optimize communication engagement for those with Rett. Aired Live: 3/30/20

WATCH NOW

Physical Therapy Strategies for Home

Dr. Meir Lotan demonstrates with two families how you can use tools at home to provide physical therapy for your children. Aired Live 3/26/20

WATCH NOW

Communicating & Connecting While at Home

Judy Lariviere, M.Ed., OTR/L shows how to support your loved one with Rett syndrome in their communication with engagement and participation in some fun family activities.

WATCH NOW

Home Enrichment Activities

We have mobilized our global therapy experts, advocates and parents to put together practical enrichment therapy ideas to use at home. This resource contains ideas that may be helpful for you and your child with Rett syndrome while you are at home. The ideas are based on the concept of participation, that is meaningful involvement in activities of daily life, with focus on the home setting.

Enrichment Activities