State Resources

Your state has resources that your family may be able to access to provide support with medical attention, therapies, Medicaid and other funding, as well as educational support. Families like yours have helped curate your state’s resources. Click on your state below to find your Rettsyndrome.org Family Empowerment State Representative, available clinical trials or Rett syndrome clinics and many other resources.

Please contact areed@rettsyndrome.org to suggest a resource for your state.