RettEd is a monthly series featuring expert speakers on various Rett-related research and care topics, sponsored by Rettsyndrome.org, to help build your personal pathway to empowerment.  At the end of each webinar, you will have a chance to ask questions and hear questions from others.  There is no cost to participate, but online pre-registration IS required. After you pre-register you will receive a personal login code via email that will allow you access to the webinar.

To suggest a topic for RettEd, please email Paige Nues.

Please join our first webinar of 2018 with world-renowned Rettologist Dr. Alan Percy, who will present a genotype and phenotype discussion from the data collected from the longitudinal Natural History Study of Rett Syndrome.

               2018 RettEd Schedule

     All Webinars will be held from 1-2:30 PM EST unless stated otherwise

 


Date   Topic   Speaker
         

1/30/18

 

 

"What is Rett Syndrome?"... the Diagnosis, the Symptoms, the Natural History, and Best Care Interventions Today

 Click to View Video 

(you will be prompted to submit a registration form to view the video)

Click to Read the Q&A

 

Alan Percy, MD, UAB

         

2/13/18 

 

Respiratory Issues in Rett Syndrome, esp during cold and flu season

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(you will be prompted to submit a registration form to view the video)

 

Click to Read the Q&A

 

Marianna Sockrider, MD, DrPH, AE-C, TCH

         

3/13/18

 

Puberty and Adulthood: Information for moms, dads, everyone! 

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(you will be prompted to submit a registration form to view the video)

 

Jane Lane, RN, UAB 

         

4/10/18

 

Common GI Issues in Rett syndrome, How to Intervene and Clinical Research Outlook 

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(you will be prompted to submit a registration form to view the video)

 

Dr. K Motil, BCM, Texas Children's Hospital

 

         

5/8/18 

 

IEP: Strategies for Rett Success 

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(you will be prompted to submit a registration form to view the video)

 

Valerie Owen, PhD 

         

6/12/18

 

 

 Movement Disorders & Motor Issues in Rett Syndrome: Definition, Intervention and Clinical Research

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(you will be prompted to submit a registration form to view the video)

  Bernhard Suter, MD, TCH 
         

7/10/18

 

Communication- Making it Count 

Register

  Judy Lariviere, M.Ed.,OTR/L, UCSF
         

8/14/18

 

Understanding Autonomic Dysfunction in Rett Syndrome 

Register

  Jeff Neul, MD, PhD, Vanderbilt University
         

9/11/18

 

Epilepsy: Incidence, Treatments & Research

Register

  Eric Marsch, MD, PhD, CHOP
         

10/9/18

 

  Planning for a Protected Tomorrow with Special Update on ABLE Accounts

Register

 

Mary Anne Ehlert, CFP, Protected Tomorrows, Inc 

         

11/13/18

  Community Choice - please email Paige Nues with topic suggestions    
         

12/11/18 

 

Community Choice - please email Paige Nues with topic suggestions

   
         

Additional videos from Rettsyndrome.org.

Click to view.

Communication Using High Mid & Low Tech, Tots to Adults with Susan Norwell, MA and Judy Lariviere, M.Ed. OTR/L 

Therapies In Rett Meir Lotan, MScPT , PhD, Ariel University, Israel part 1 of 2  

Therapies in Rett_Meir Lotan, MScPT , PhD, Ariel University, Israel part 2 of 2