RettEd is a monthly series featuring expert speakers on various Rett-related research and care topics, sponsored by Rettsyndrome.org, to help build your personal pathway to empowerment.  At the end of each webinar, you will have a chance to ask questions and hear questions from others.  There is no cost to participate, but online pre-registration IS required. After you pre-register you will receive a personal login code via email that will allow you access to the webinar.

Attendees will receive a certificate of attendance via email after the webinar.

               2019 RettEd Schedule

     All Webinars will be held from 1-2:30 PM EST unless stated otherwise

 


Date   Topic   Speaker
         

1/08/19

 

 

Newer Parents: Recommendations for a Healthier Start to Your Unexpected Journey

Click to View Recording

 

 

Tristen Dinkel, RN, DCH, Paige Nues, Sam Brant

         

2/12/19 

 

Rett Syndrome Research Outlook:
2019 & Beyond

Click to View Recording

 

 

Steve Kaminsky, PhD

         

3/12/19

 

A Good Night’s Sleep To All

Click to View Recording

 

 

Dr. Daniel Glaze, TCH, BCM

         

4/09/19

 

IEP Strategies for Successful Inclusion

Click to View Recording

 

 

Mickie McCool and Katie Busch

         

5/11/19 

  Adulthood: Living and Lifestyle Options
 

Click to View Recording

 

 

 

Jenny Downs, PhD, Michelle Stahlhut, PT, PhD, Theresa Bartolotta, PhD, Donna Witzleben

         

6/11/19

 

  Nutrition Strategies for Rett Syndrome

Register

 

 

 

Suzanne Geerts, MS, RD, LD UAB

         

7/09/19

 

  Genetics of Rett Syndrome and the MECP2 Gene

Register

 

 

 

Steve Skinner, MD and Hannah Warren Moore, MS, CGC

8/13/19

 

  Caregiver: Taking Care of Yourself

Register

 

 

 

Sarika Peters, PhD, psychologist Vanderbilt Kennedy Center Rett Program; Marie Bateh, PT and parent

9/10/19

 

  Research Update: 20 Years Since MECP2 Gene Discovery

Register

 

 

 

Huda Y. Zoghbi, M.D., Director, Jan and Dan Duncan Neurological Research Institute at Texas Children’s Hospital; Baylor College of Medicine

10/15/19

 

  Newly Published Communication Guidelines for Rett

Register

 

 

 

Gill Townend, Theresa Bartolotta

11/12/19

 

  Orthopedics: Scoliosis & Hips

Register

 

 

 

TBA

 

12/10/19

 

  Clinical Trial Opportunities and Updates

Register

 

 

 

Tim Benke, MD, PhD, Director, Rett syndrome Clinic, Children's Hospital Colorado, and Rettsyndrome.org Medical Advisor

         
   

Check out past RettEd webinars on topics such as communication, GI, respiratory, movement disorder, epilepsy, puberty, autonomic dysfunction, IEPs, PT, sibling issues and more.


Click here to view previous RettEd recordings

   

2019 RettEd Webinars are made possible by a generous support from the following: