RettEd is a monthly series featuring expert speakers on various Rett-related research and care topics, sponsored by Rettsyndrome.org, to help build your personal pathway to empowerment.  At the end of each webinar, you will have a chance to ask questions and hear questions from others.  Online registration is requested but there is no cost to participate. 

To suggest a topic for RettEd, please email Paige Nues.

Please join our first webinar of 2018 with world-renowned Rettologist Dr. Alan Percy, who will present a genotype and phenotype discussion from the data collected from the longitudinal Natural History Study of Rett Syndrome.

2018 RettEd Schedule

All Webinars will be held from 1-2:30 PM EST unless stated otherwise

 


Date   Topic   Speaker   Register   View Video   Q & A PDF
                     

1/30/18

 

  "What is Rett Syndrome?"... the Diagnosis, the Symptoms, the Natural History, and Best Care Interventions Today   Alan Percy, MD  

Register HERE

       
                     

2/13/18 

  Respiratory Issues in Rett Syndrome                
                     

3/13/18

  Puberty and Adulthood: Information for moms, dads, everyone!    Jane Lane, RN, UAB             
                     

4/10/18

  Common GI Issues in Rett syndrome, How to Intervene and Clinical Research Outlook    Dr. K Motil, BCM, Texas Children's Hospital             
                     

5/8/18 

  IEP: Strategies for Rett Success                 
                     

6/12/18

 

   Movement Disorders &Motor Issues in Rett Syndrome: Definition, Intervention and Clinical Research                
                     

7/10/18

  Communication- Making it Count    Judy Lariviere             
                     

8/14/18

  Understanding Autonomic Dysfunction in Rett Syndrome                 
                     

9/11/18

  Epilepsy: Incidence, Treatments & Research   Dr. Eric Marsch, CHOP            
                     

10/9/18

  Community Choice - please email Paige Nues with topic suggestions                
                     

11/13/18

  Community Choice - please email Paige Nues with topic suggestions                
                     

12/11/18 

 

Community Choice - please email Paige Nues with topic suggestions