RettEd is a monthly series featuring expert speakers on various Rett-related research and care topics, sponsored by Rettsyndrome.org, to help build your personal pathway to empowerment.  At the end of each webinar, you will have a chance to ask questions and hear questions from others.  There is no cost to participate, but online pre-registration IS required. After you pre-register you will receive a personal login code via email that will allow you access to the webinar.

Attendees will receive a certificate of attendance via email after the webinar.

               2019 RettEd Schedule

     All Webinars will be held from 1-2:30 PM EST unless stated otherwise

 


Date   Topic   Speaker
         

1/08/19

 

 

Newer Parents: Recommendations for a Healthier Start to Your Unexpected Journey

 

 

 

Tristen Dinkel, RN, DCH, Paige Nues, Sam Brant

         

2/12/19 

 

Research Outlook and Ways to Participate

 

 

 

Steve Kaminsky, PhD and Janice Ascano, PhD

 

         

3/12/19

 

A Good Night’s Sleep To All

 

 

 

Dr. Daniel Glaze, TCH, BCM

         

4/08/19

 

IEPs: Strategies for Successful Inclusion, full or partial

 

 

 

TBA

 

         

5/11/19 

 

Adulthood: Living and Lifestyle options
Saturday: Special Day/Time
 

 

 

 

 

Jenny Downs and Guest Panel

         

6/11/19

 

 

Nutrition

 

 

 

 

Suzanne Geerts, RD, UAB

         

7/09/19

 

Genetics of Rett syndrome and Related Disorders

 

 

 

 

TBA

         

TBD

 

Caregiver: taking care of yourself, incl. body mechanics, respite, backup

 

 

 

 

Panel

 

         

9/10/19

 

Communication AAC and AT: Assessing and Funding Devices

 

 

 

 

TBA

         

10/15/19

 

Occupation Therapy - what do we work on?

 

 

 

 

TBA

 

         

11/12/19

 

Community Choice! email Paige Nues pnues@rettsyndrome.org

 

 

 

 

 

 

 

 
         

12/10/19 

 

Community Choice! email Paige Nues pnues@rettsyndrome.org

 

 

 

 

 

 

         
   
Click here to view previous RettEd recordings