RettEd is a monthly series featuring expert speakers on various Rett-related research and care topics, sponsored by Rettsyndrome.org, to help build your personal pathway to empowerment.  At the end of each webinar, you will have a chance to ask questions and hear questions from others.  There is no cost to participate, but online pre-registration IS required. After you pre-register you will receive a personal login code via email that will allow you access to the webinar.

Attendees will receive a certificate of attendance via email after the webinar.

               2018 RettEd Schedule

     All Webinars will be held from 1-2:30 PM EST unless stated otherwise

 


Date   Topic   Speaker
         

1/30/18

 

 

"What is Rett Syndrome?"... the Diagnosis, the Symptoms, the Natural History, and Best Care Interventions Today

 Click to View Video 

(you will be prompted to submit a registration form to view the video)

Click to Read the Q&A

 

Alan Percy, MD, UAB

         

2/13/18 

 

Respiratory Issues in Rett Syndrome, esp during cold and flu season

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(you will be prompted to submit a registration form to view the video)

 

Click to Read the Q&A

 

Marianna Sockrider, MD, DrPH, AE-C, TCH

         

3/13/18

 

Puberty and Adulthood: Information for moms, dads, everyone! 

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(you will be prompted to submit a registration form to view the video)

 

Audience questions are all addressed by our Speaker within the recording

 

Jane Lane, RN, UAB 

         

4/10/18

 

Common GI Issues in Rett syndrome, How to Intervene and Clinical Research Outlook 

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(you will be prompted to submit a registration form to view the video)

 

Audience questions are all addressed by our Speaker within the recording

 

Dr. K Motil, BCM, Texas Children's Hospital

 

         

5/8/18 

 

IEP: Strategies for Rett Success 

Click to View Video

(you will be prompted to submit a registration form to view the video)

 

Audience questions are all addressed by our Speaker within the recording

 

Valerie Owen, PhD 

         

6/12/18

 

 

Movement Disorders & Motor Issues in Rett Syndrome: Definition, Intervention and Clinical Research

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(you will be prompted to submit a registration form to view the video)

 

Audience questions are all addressed by our Speaker within the recording

  Bernhard Suter, MD, TCH 
         

7/10/18

 

Communication- Making it Count 

Click to View Video

(you will be prompted to submit a registration form to view the video)

 

Audience questions are all addressed by our Speaker within the recording

  Judy Lariviere, M.Ed.,OTR/L, UCSF
         
8/7/18  

U.S.-Russia Rett syndrome Cultural Exchange

Olga Timutsa will be visiting the U.S. as a guest of Rettsyndrome.org for a cultural exchange focused on diagnosis, care, and life for children and adults with Rett syndrome and their families. Hear Olga share about life in Russia with Rett syndrome and how our research and efforts have a global impact.

Register

 

Olga Timutsa, President, Rett Syndrome Association of Russia, Mother to Katerina

         

8/14/18

 

Understanding Autonomic Dysfunction in Rett Syndrome 

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(you will be prompted to submit a registration form to view the video)

 

Audience questions are all addressed by our Speaker within the recording

  Jeff Neul, MD, PhD, Vanderbilt University
         

9/11/18

 

Epilepsy: Incidence, Treatments & Research

Register

  Eric Marsch, MD, PhD, CHOP
         

10/9/18

 

Planning for a Protected Tomorrow with Special Update on ABLE Accounts

Register

 

Mary Anne Ehlert, CFP, Protected Tomorrows, Inc 

         

11/13/18

6PM ET

 

Gross Motor Skills, benefits of Environmental Enrichment

Register

 

Jenny Downs, PhD

Telethon Kids Institute, AU

 
         

12/11/18 

 

Community Choice - please email Paige Nues with topic suggestions

 

 

         

Additional videos from Rettsyndrome.org.

Click to view.

Communication Using High Mid & Low Tech, Tots to Adults with Susan Norwell, MA and Judy Lariviere, M.Ed. OTR/L 

Therapies In Rett Meir Lotan, MScPT , PhD, Ariel University, Israel part 1 of 2  

Therapies in Rett_Meir Lotan, MScPT , PhD, Ariel University, Israel part 2 of 2