Contact Us About Trofinetide

The FDA approval of DAYBUE^™ (trofinetide) for the treatment of Rett syndrome has been more than a decade in the making and we know you have questions. You can find answers to many of your questions on Acadia’s new website – DAYBUE.com – and we recommend contacting your physician for questions pertaining directly to your child’s care.

We want to hear from you! The FDA’s approval of DAYBUE is a huge milestone for the Rett community, the culmination of the efforts of so many over the course of more than a decade, including the courageous families who participated in every stage of the clinical trial process. Use the form below to share what this decision means to you and what hope it brings for the future.

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Name*

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Do you know someone with Rett syndrome?*

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Your relationship to the individual with Rett syndrome:*

Parent

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Please enter your comments or question below:

Share what this decision means for you, your family, and your loved one with Rett. What thoughts or emotions did you have when you heard the news? If you were part of this journey by participating in the clinical trials or in some other way, how does it feel to know you were instrumental in making this a reality?

All submissions may become part of our celebration of the first FDA-approved treatment for Rett syndrome.

Upload a photo or video of how you celebrated this historic day.

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Trofinetide Announcement Contact Form

Contact Us About Trofinetide

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Trofinetide is the First of Many Treatments Needed:

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