Department of Intellectual and Developmental Disabilities (DIDD)
Tuesday, July 30, 2019
Visit Department of Intellectual and Developmental Disabilities (DIDD) Website 1-615-532-6530
Visit Department of Intellectual and Developmental Disabilities (DIDD) Website 1-615-532-6530
Visit Biobanking of Rett Syndrome and Related Disorders Website The purpose of this study is to advance understanding of the natural history of Rett syndrome (RTT), MECP2-duplication disorder (MECP2 Dup), RTT-related disorders including CDKL5, FOXG1, and individuals with MECP2 mutations who do not have RTT. Samples with DNA will be collected. Vanderbilt University For more … Read More
Jaimie Patrick, volunteer Family Empowerment Representative [email protected] 1-515-297-4755
Samantha Brant – Family & Community Engagement Manager, International Rett Syndrome Foundation [email protected] 1-913-221-8157